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@Henrietta 

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Henrietta

Mini rant

So I met up with a friend yesterday for the first time since dx and she wanted to know what my MS was like. As it’s mostly silent right now I said that apart from very numb toes and sometimes feeling like I’m walking on gravel it was OK. Her response was to exclaim that she had numb toes too. She th...

MS patient led study on Qigong for MS

Hi. My name is Cara & I have had MS for 15 years. I started a company, The SwitchVR, 3 years ago. Our purpose is to develop holistic therapeutics (i.e. meditation, mindfulness, Qigong) using technology so that we can offer complementary practices for MS patients, like myself. Our first product i...

@MattW 

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MattW

Viagra & new activity (ms, not bedroom)

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

Thought please

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

@MattW 

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MattW

Sildenafil thoughts please

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

@LM24 

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LM24

Sativex

Hi, I know I’m one of the lucky ones as I was prescribed sativex (medical cannabis) 3 weeks ago for my severe spacticity. I’ve had to slowly increase the dose every day until you find the right amount. My stiff legs do feel better for being on it so thankfully it’s now on repeat prescription. I had ...

@RitaM 

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RitaM

Thank you for all the insights

Hello this is my first post, although I have been following the forum for several months. I was diagnosed in January and my MS nurse recommended the site. I want to say thank you to you all for all the support you give to each other and new people like me and loads of information that I have picked ...

@EllieSmith 

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EllieSmith

Falling, my body just drops no warning?

Love that ms nurse says oh I respond to emails faster... Last time I got no response at all. This time well I'm 4days in not holding much luck. Guess I'll phone tomorrow and see. Legs been giving out multiple times a day for almost three weeks now. Plenty of bruises have been collected and pulled m...