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Coronvairus /Ocrelizumab vaccine trial

Hi all, - If you take ocrelizumab (Ocrevus) , as I do, and want to participate in a vaccine trial then have a read of this post on the Barts MS blog and get in touch with them via the blog. - https://multiple-sclerosis-research.org/2020/06/mscovid19-covax-or-coronavirus-ocrelizumab-vaccination-study...

@AnnaKonuh 

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AnnaKonuh

puzzled

I signed a contract for conducting clinical trials of the drug. My relatives did not approve of my decision and each time they scared me with scary stories and the fact that I would be an experimental mouse🤷. In Ukraine, MS treatment is very expensive, and I think that for me this is a chance to ge...

@Ralee 

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Ralee

Ursolic Acid

Has anyone tried it out? It might promote myelin repair, they trialled it out in a mouse model etc and it appeared to help. It's available to buy, so I've just ordered some to try out. I'm not holding my breathe but it's worth ago.

@potter 

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potter

Bladder problems

My bladder has finally decided not to fully empty so I have been fighting of bladder infections for a couple of months. I started seeing a urologist a couple of weeks ago, I went through all of the tests and failed. He has me on a low dose antibiotic and is trying some different medications. H...

Ocrevus stopped due to COVID19

I was supposed to have my first Ocrevus infusion today but it has been deferred in light of the coronavirus outbreak and I will be treated with Brabio for the time being instead. I had emailed some concerns to my hospital (The National Hospital for Neurology and Neurosurgery in London) as I was worr...

@sarahlou 

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sarahlou

TOPIC Trial

Is anybody on here taking part in the TOPIC drugs trial with Teriflunomide? My consultant has asked me to take part but there doesnt seem to be much information on the internet so until i hear of any side effects im kinda thinking that i wont take part. would be good to hear from anyone already tak...

Multiple Sclerosis and Turmeric: An Unscientific Trial

Since I've been told by the infamous Dr G (Dr Giavanoni) that it would be too expensive to clinically trial turmeric, I've created this Facebook group to share people's experiences with and document any benefits or side effects that they have after trying half a teaspoon of the stuff after eating