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@MattW 

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MattW

Sildenafil thoughts please

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

@Henrietta 

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Henrietta

Mini rant

So I met up with a friend yesterday for the first time since dx and she wanted to know what my MS was like. As it’s mostly silent right now I said that apart from very numb toes and sometimes feeling like I’m walking on gravel it was OK. Her response was to exclaim that she had numb toes too. She th...

@Ralee 

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Ralee

Ursolic Acid

Has anyone tried it out? It might promote myelin repair, they trialled it out in a mouse model etc and it appeared to help. It's available to buy, so I've just ordered some to try out. I'm not holding my breathe but it's worth ago.

MS patient led study on Qigong for MS

Hi. My name is Cara & I have had MS for 15 years. I started a company, The SwitchVR, 3 years ago. Our purpose is to develop holistic therapeutics (i.e. meditation, mindfulness, Qigong) using technology so that we can offer complementary practices for MS patients, like myself. Our first product i...

@MattW 

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MattW

Viagra & new activity (ms, not bedroom)

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

@sarahlou 

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sarahlou

TOPIC Trial

Is anybody on here taking part in the TOPIC drugs trial with Teriflunomide? My consultant has asked me to take part but there doesnt seem to be much information on the internet so until i hear of any side effects im kinda thinking that i wont take part. would be good to hear from anyone already tak...

@LM24 

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LM24

Sativex

Hi, I know I’m one of the lucky ones as I was prescribed sativex (medical cannabis) 3 weeks ago for my severe spacticity. I’ve had to slowly increase the dose every day until you find the right amount. My stiff legs do feel better for being on it so thankfully it’s now on repeat prescription. I had ...

Thought please

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

@potter 

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potter

Bladder problems

My bladder has finally decided not to fully empty so I have been fighting of bladder infections for a couple of months. I started seeing a urologist a couple of weeks ago, I went through all of the tests and failed. He has me on a low dose antibiotic and is trying some different medications. H...