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Hello! I’m one of the very blessed US patients receiving Mavenclad (and for free!!). I started my first round almost a month ago and start the second (and final for the year) in a week. So far so good and I’m pleasantly surprised by how few side effects I’ve experienced. While I expect that the ensu...

I’ve had RRMS for 4 years and I’ve had 2 rounds of Lemtrada. For years I’ve suffered with extreme sweating and after Lemtrada it’s gotten worse! I literally can’t leave the house as I’ve only got to move and The sweat is pouring off me. I take small electric fans everywhere with me and I have a fa...

Hi all. Does anyone have any experiences of taking Amantadine for MS fatigue. I am currently taking modafinil x 2 100g first thing each day but still suffer from chronic fatigue in the afternoons. MS Nurse has recommended switching to Amantadine. I’m happy to switch but reluctant to give up moda...

Hi guys 👋 I'm now SPMS and everything is getting decidedly more difficult. Showering in particular is a major hazard in many ways. My right side is good but my left side is affected by spasticity. I'm right handed and can't do a lot with the left due to weakness and proprioception issues. So...

I saw my consultant today and finally feel like she’s listening to me. My lymphocytes are back to normal levels six months after cladribine just need more bloods in October and I’m ready for year two. As I failed in my attempt at my MRI in June not sure how effective the tablets have been for me ...

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

Just went to the dentist and saw the dental hygienist. She asked if anything had changed with my health so I mentioned being recently diagnosed with MS. She didn't say anything. AT ALL. For 30 minutes until the appointment was over at which point she launched into a talk on functional medicine and t...

I am looking for advice from people who have taken Tysabri while pregnant. I just started my 3rd trimester and I would like to continue taking Tysabri through the whole pregnancy. It is very hot where I live right now and I am scared that if I stop the Tysabri my symptoms will get much worse. I also...

There’s quite a bit of literature online for this, and I will be talking to me doctor of course. But as I am on Tecfidera, I was hoping one of you on my team would have a word for me in regard to taking the medication while A) trying to conceive B) while breastfeeding. I know you don’t take the me...

I start this year my caminho Santiago. I was afraid always thinking and if a can't walk more that 10km. Well it was amazing day by day I whant more :) I share my croundfounding and in there is all the social media. I beg all the community to share my journey, let me show that is possible for all o...