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@WendyHills 

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WendyHills

Working towards yr2 cladribine

I saw my consultant today and finally feel like she’s listening to me. My lymphocytes are back to normal levels six months after cladribine just need more bloods in October and I’m ready for year two. As I failed in my attempt at my MRI in June not sure how effective the tablets have been for me ...

Radiological/clinically isolated syndrom

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

@HelenJR 

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HelenJR

Unsolicited advisors

Just went to the dentist and saw the dental hygienist. She asked if anything had changed with my health so I mentioned being recently diagnosed with MS. She didn't say anything. AT ALL. For 30 minutes until the appointment was over at which point she launched into a talk on functional medicine and t...

Pregnancy & Tysabri Help

I am looking for advice from people who have taken Tysabri while pregnant. I just started my 3rd trimester and I would like to continue taking Tysabri through the whole pregnancy. It is very hot where I live right now and I am scared that if I stop the Tysabri my symptoms will get much worse. I also...

@Jeslyn_Mauriello 

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Jeslyn_Mauriello

Tecfidera and child-bearing?

There’s quite a bit of literature online for this, and I will be talking to me doctor of course. But as I am on Tecfidera, I was hoping one of you on my team would have a word for me in regard to taking the medication while A) trying to conceive B) while breastfeeding. I know you don’t take the me...

The cure for MS for me is travel

I start this year my caminho Santiago. I was afraid always thinking and if a can't walk more that 10km. Well it was amazing day by day I whant more :) I share my croundfounding and in there is all the social media. I beg all the community to share my journey, let me show that is possible for all o...

What's your experience of MS services?

Apologies, this is a UK-focused post, but all perspectives welcome. There is a well documented variance in MS services from one area of the UK to the next. The UK MS Society has referred to this as a postcode lottery. What are your experiences? Do you feel lucky to be under the care of your MS cent...

Experience with Trigeminal Neuralgia

Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...

@basgds 

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basgds

Thanks for accepting my request to join.

I just feel right now like the closer I am to an answer, the further away I am. I have been sick for 5 years and have had multiple diagnoses - Vitamin B12 deficient, COPD, Asthma, Vertigo, Adrenal Stress, Arthritis, Depression, just general aging. The thing is no matter what meds I took, it seems ...

Reducing work hours

quick question not sure if you anyone will be able to assist I am contemplating reducing my work hours and thought the reduced pay might have been offset by income protection but apparently not so, don't suppose anybody has similar experience?