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What's your experience of MS services?

Apologies, this is a UK-focused post, but all perspectives welcome. There is a well documented variance in MS services from one area of the UK to the next. The UK MS Society has referred to this as a postcode lottery. What are your experiences? Do you feel lucky to be under the care of your MS cent...

Experience with Trigeminal Neuralgia

Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...

@basgds 

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basgds

Thanks for accepting my request to join.

I just feel right now like the closer I am to an answer, the further away I am. I have been sick for 5 years and have had multiple diagnoses - Vitamin B12 deficient, COPD, Asthma, Vertigo, Adrenal Stress, Arthritis, Depression, just general aging. The thing is no matter what meds I took, it seems ...

Reducing work hours

quick question not sure if you anyone will be able to assist I am contemplating reducing my work hours and thought the reduced pay might have been offset by income protection but apparently not so, don't suppose anybody has similar experience?

@melissa.g 

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melissa.g

Mixed emotions at MRI results

Hi everyone. Haven't posted much lately but I felt inclined to share today. So, I hadn't had a brain MRI in 2.5 years, and they finally set me for one last month. I don't see the dr until February so I asked my chiropractor (who also does neuro rehab etc) to get the results for me. We went over th...

@cwright17 

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cwright17

HELP! Am I depressed?

I don't know if anyone else feels like this, but over the past couple of months I feel lethargic, down and very teary. It's like everything I do, I hit a brick wall and don't want to continue. I've had suicidal ideation, stopped only by the thought of the impact on my family and my partner. I've cri...

@minnie 

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minnie

Soursop - MS people

Hi there, Ive had MS (relapse and remittance) for 15 year now. I was just wondering whether anyone has heard of 'Soursop' or have tried the herbs/ drink. If so, How did you find it? The reason why I am asking is because I have heard from a number of people (people who don't know each other) that ...

@Hayla 

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Hayla

Relationship Stress

MS is stressing. We MSers know that first hand. Unfortunately seems that my boyfriend of 6 years is only now realizing that. We have been fighting a lot and he has said very hurtful things to me. Its true that he apologizes when his temper has cooled off but truth is that for the past few months we ...

@dmac95 

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dmac95

FAMPYRA

Hi All I am being put forward to try FAMPYRA to see if it helps with my walking. Today my MS Nurse asked me if I was still taking LDN as she wasn't sure if it would be ok with FAMPYRA. Does anybody have experience or know if it will be ok to take both together.

@Feloreena 

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Feloreena

Slow recovery from Optic Neuritis?

Hi everyone, hope you are all doing well. :) I am interested to hear about people's experiences with Optic Neuritis, and in particular those who have had a slow recovery from it. My own story - I got an attack of Optic Neuritis in my left eye in June this year. It started off with some mild pain a...