Looking for
something specific?

Hey everyone, was just curious if anyone has taken MAVENCLAD and if they found that the second week (week 5) affected them more or less than the first? In terms of side effects or feeling sick, etc.

Seems like a bit of a weird question but does stormy weather effect your ms? There is currently a storm hitting here (the first since I've been diagnosed with ms) and my head feels like what could only be described as stuffy/heavy? My ears have a constant feel to them as if they are about to pop

Hi I am 10 years in with RR MS, and had 2 very successful doses of alemtuzumab, in January 2016 and January 2017. I responded very well to the alemtuzumab neurologically (despite being highly prone to any virus, cold or infection going in the 1st year) and in 2018 was in extremely good neurologica...

Hello! I’m one of the very blessed US patients receiving Mavenclad (and for free!!). I started my first round almost a month ago and start the second (and final for the year) in a week. So far so good and I’m pleasantly surprised by how few side effects I’ve experienced. While I expect that the ensu...

I’ve had RRMS for 4 years and I’ve had 2 rounds of Lemtrada. For years I’ve suffered with extreme sweating and after Lemtrada it’s gotten worse! I literally can’t leave the house as I’ve only got to move and The sweat is pouring off me. I take small electric fans everywhere with me and I have a fa...

Hi all. Does anyone have any experiences of taking Amantadine for MS fatigue. I am currently taking modafinil x 2 100g first thing each day but still suffer from chronic fatigue in the afternoons. MS Nurse has recommended switching to Amantadine. I’m happy to switch but reluctant to give up moda...

Hi guys 👋 I'm now SPMS and everything is getting decidedly more difficult. Showering in particular is a major hazard in many ways. My right side is good but my left side is affected by spasticity. I'm right handed and can't do a lot with the left due to weakness and proprioception issues. So...

I saw my consultant today and finally feel like she’s listening to me. My lymphocytes are back to normal levels six months after cladribine just need more bloods in October and I’m ready for year two. As I failed in my attempt at my MRI in June not sure how effective the tablets have been for me ...

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

Just went to the dentist and saw the dental hygienist. She asked if anything had changed with my health so I mentioned being recently diagnosed with MS. She didn't say anything. AT ALL. For 30 minutes until the appointment was over at which point she launched into a talk on functional medicine and t...