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London, United Kingdom

@mser79 

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mser79

Ocrevus- fatigue following infusion

Hello. Just wondering what people's experience of fatigue following Ocrevus infusion was? We were planning on trying to take a trip away (in the UK) immediately after the second infusion. Trying to understand if that's advisable given energy levels? Thanks

@Patrick_Harrington 

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Patrick_Harrington

Old Man PAT here

Hello have had MS since 1970, still walking but falling more but I was expecting that. Question I was on Aubagio 4yrs and stopped taking 1 month ago. Now experiencing more balance issues. What are the withdrawal symptoms if any?

@Will_Berard 

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Will_Berard

Live Standup Comedy - tonight

Hello Shifters, I will performing some standup comedy "live" over the internet, as per the New Normal. Starts tonight at 8:20 (20:20 - get it? Cause it's the year? see what they did there? ) FB: https://www.facebook.com/events/306540333735425/ YT: https://www.youtube.com/watch?v=7RsMJtmmqOI Tha...

@A_Girls_Gotta_Eat 

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A_Girls_Gotta_Eat

Lymph nodes and MS

Hello I hope everyone is doing well ! I was just wondering if anyone else has experienced hard lumps under the skin !? I spoke to my GP and he told me it could be a cyst or my lymph nodes and I think it is my lymph nodes. Does anyone know how this correlates with Ms ?

@Constance56 

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Constance56

Hello all!

I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...

Hip pain after long walks

Hello everyone 😀 Just a random question but I’ve noticed that after long walks I’ve started to get sore hips don’t know if it’s MS or just because lock down happened and I’ve not really done a lot of walking. But after long walks my hips kill the next day affecting my my day to day life. Anyone els...

@melmel1 

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melmel1

Anyone in same boat?

So I was diagnosed with MS in 2018 by a general neurologist after all the tests and on and off symptoms for years, I have 5 lesions on brain 1 on the spine, since then been with a MS specialist who did not want to put me on disease modifying drugs as he wanted to watch me further he believes it's M...

@Faye_Austin 

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Faye_Austin

Back ache

Hello people I am a little new at this posting questions. But I thought I’d give it a go. Who better to ask than the ma community. I was diagnosed with ms after having optic neuritis About 8-9 years ago. Since then I have very few symptoms. I do suffer what I Describe as a ice cold feeling/ pain ...

@Kelly_Brown 

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Kelly_Brown

Ocrevus - Shielding.

Hello everyone, hope youre fairing well. Im having my second round of ocrevus (so first full dose not the half doses) on the 12th of August and have been told i have to shield for six weeks after. I understand why but ive been really careful for the whole outbreak and just as we get to a point wher...