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@Paula_Lewis 

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Paula_Lewis

Cooling vests

Hello Everyone, I am new to this forum. I just wanted to ask for some advice regarding cooling vests/ scarves. My symptoms are much worse during the warmer weather and I was thinking of trying a vest/ scarf. I have looked online and there are many different types available. I just wondered could any...

@EmilyMac 

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EmilyMac

Treatment advice

Hello! I’ve been told today how amazingly positive this site is and I can already see from just having a little nose it’s just what I need! I was diagnosed 3 weeks ago, shock probably was an understatement. I haven’t googled anything really, just had conversations with the Neurologist and my nurse. ...

Baclofen and pregnancy

Hello! Has anyone taken baclofen throughout their pregnancy? I came off it in order to have a baby but now I’m pregnant I am suffering so bad with leg spasms :( I can’t relax or sleep and I’m at my Whitt’s end but I am scared to take it as the study numbers are so low. I don’t think I can go on like...

@Thorpee 

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Thorpee

AFO/brace for foot drop - running

Hello, has anyone who suffers with foot drop found an AFO that helps you to run. I have one of those which clips into the laces of my shoe and it is great for gentle walking. But running is not possible with it. I've looked at some online but they cost a fortune so it's a lot of money to waste if t...
London, United Kingdom

@mser79 

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mser79

Ocrevus- fatigue following infusion

Hello. Just wondering what people's experience of fatigue following Ocrevus infusion was? We were planning on trying to take a trip away (in the UK) immediately after the second infusion. Trying to understand if that's advisable given energy levels? Thanks

@Patrick_Harrington 

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Patrick_Harrington

Old Man PAT here

Hello have had MS since 1970, still walking but falling more but I was expecting that. Question I was on Aubagio 4yrs and stopped taking 1 month ago. Now experiencing more balance issues. What are the withdrawal symptoms if any?

@Will_Berard 

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Will_Berard

Live Standup Comedy - tonight

Hello Shifters, I will performing some standup comedy "live" over the internet, as per the New Normal. Starts tonight at 8:20 (20:20 - get it? Cause it's the year? see what they did there? ) FB: https://www.facebook.com/events/306540333735425/ YT: https://www.youtube.com/watch?v=7RsMJtmmqOI Tha...

@A_Girls_Gotta_Eat 

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A_Girls_Gotta_Eat

Lymph nodes and MS

Hello I hope everyone is doing well ! I was just wondering if anyone else has experienced hard lumps under the skin !? I spoke to my GP and he told me it could be a cyst or my lymph nodes and I think it is my lymph nodes. Does anyone know how this correlates with Ms ?

@Constance56 

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Constance56

Hello all!

I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...