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Hello everyone, hope youre fairing well. Im having my second round of ocrevus (so first full dose not the half doses) on the 12th of August and have been told i have to shield for six weeks after. I understand why but ive been really careful for the whole outbreak and just as we get to a point wher...

Been waiting 2 years to start on Ocreus now, had blood test after blood test its like the doc always finds some thing to stop me starting on it. I've not heard from the ms team since the being of March and that was a letter about my last blood test. feel like im banging my head on a wall.

Hi everyone, hope you are all doing well. :) I am interested to hear about people's experiences with Optic Neuritis, and in particular those who have had a slow recovery from it. My own story - I got an attack of Optic Neuritis in my left eye in June this year. It started off with some mild pain a...

From positive and active days to a day like this...more slow and feeling tired of everything. Sometimes I`m thinking and trying to understand is it just the case of MS. I somehow start to see correlations between my slow days and days where I feel active and positive! I have read and heard that foo...

Years ago I needed to change my life completely! Why? That was not my choice but my health conditions. I was diagnosed with MS and it felt heavy to carry with me. After 17 years living with MS I feel that there is something more I can do. I`m thinking of creating MS mom needs serving, supportive, a...

Hi all, We’re really keen to understand how MSers use digital services to manage their MS; what works well, what doesn’t, what you think is missing and what barriers there are to getting what you need. We’re working with Salford Royal NHS Foundation Trust (hospital in the UK) and Clever Together (o...

Social distancing is vital to stop covid-19 but it seems that no thought was given to people with reduced or limited mobility. Entrances closer to parking have been closed to limit access so I had to go to the only entrance at the other side of the building. No air cons to not spread the virus are n...

Hi Everyone, Monday, June 29, 2020. 3:00pm. Dr. Mark Skeen, Chief Clinical Neurologist of Duke Health in Durham, NC looks at me and said, "Yes, today's two MRI's confirm my suspicions. Now, let's focus on medicine over the next weeks, so that we can attack this!" For nearly two years, I have been ...

Two musicians with MS One in Texas and the other in New York have made something amazing over the last year and a half and never even met in person. This conceptual album is about to change the game. Not only the music but most of the animation and artwork were done by the two musicians with #multip...