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Hi all, We’re really keen to understand how MSers use digital services to manage their MS; what works well, what doesn’t, what you think is missing and what barriers there are to getting what you need. We’re working with Salford Royal NHS Foundation Trust (hospital in the UK) and Clever Together (o...

Social distancing is vital to stop covid-19 but it seems that no thought was given to people with reduced or limited mobility. Entrances closer to parking have been closed to limit access so I had to go to the only entrance at the other side of the building. No air cons to not spread the virus are n...

Hi Everyone, Monday, June 29, 2020. 3:00pm. Dr. Mark Skeen, Chief Clinical Neurologist of Duke Health in Durham, NC looks at me and said, "Yes, today's two MRI's confirm my suspicions. Now, let's focus on medicine over the next weeks, so that we can attack this!" For nearly two years, I have been ...

Two musicians with MS One in Texas and the other in New York have made something amazing over the last year and a half and never even met in person. This conceptual album is about to change the game. Not only the music but most of the animation and artwork were done by the two musicians with #multip...

Hi there, Ive had MS (relapse and remittance) for 15 year now. I was just wondering whether anyone has heard of 'Soursop' or have tried the herbs/ drink. If so, How did you find it? The reason why I am asking is because I have heard from a number of people (people who don't know each other) that ...

Years ago I needed to change my life completely. Why? That was not my choice but my health conditions. I was diagnosed with MS and it felt heavy to carry with me. I was afraid to dream about the future or even live a day with love, care, and understanding to myself. I felt guilty when I wanted to ...

Hi Has anyone had any news regarding DMT treatments in the UK now? My MS nurse is waiting to hear when they might be able to re-start, and I am on the list for the initial Ocrevus infusion - hoping this will be soon, of course.. Wishing you all well.

Well I'm back to see if anyone knows anything. I've had problems with movement disorder since 2018. - while it's being worse the past few days alongside my spasticity. The thing that confused me is it's like I've got this new tic disorder or maybe it's just worse i dont know. Basically in the pas...

Hello MS team! I am an actor writing a play which includes my experiences as an MS warrior. I wanted to know if anyone here has MS counselling experience or can recommend? I would love to have a chat with them by way of researching other perspectives of MS, rather than just my own. I'd also be ...

I am switching from Tecfidera to Ocrevus. I'd been waiting since the beginning of the year and then the coronavirus came into play. So now I am still waiting. It seems that I had new lesions on my last MRI scan even though I'd been on Tecfidera for the last five years. I just hope this thing starts ...