Looking for
something specific?

Hi. I'm Constance. I was diagnosed with PPMS in 2010 but had symptoms 5 years prior. I retired in 2013 due to too many symptoms. I'm about to turn 64 and walk with a cane. I take High dosage biotin, use the Fasting Mimicking diet almost every day. I'm gluten free and try to stretch/ exercise daily.

Hello I've been recently diagnosed, I'm still getting my head round it, fed up with the chronic pain, I'm working mum with two kids. My MS Nurse is coming to see me next week. I feel like people that don't have MS don't really get it. If I say I'm tired they say oh I am too, erm it's not the same!!...

Hi I’m looking for some advice if poss.... I have been on copaxone for 10 years and the sight reactions are much worse which has made me seek alternative DMTs. I’ve chosen Tecfidera and got the green light so just waiting on starting. My issue is I work in public facing role for civil service and h...

I developed ITP (low platelets) and low white count 3 years after Round 2 of Lemtrada. It has been 7 months now and I am taking Promacta for my low platelet counts. My neutrophils are staying low and currently are 0.1. Has anyone else developed ITP or low white counts that lasted this long?

Hi all, I’m looking for some inspiration - I think I need to change career to something that’s more suited to a slower pace of life and a bit less demanding (I’m a digital product manager - which is kind of like a project manager, quite fast paced and demanding). Has anyone retrained to do somethin...

I apologize in advance for the long post. I know MS is different from Person to person, My ms consists of numbness in my right hand and neurological pain in my abdomen and fatigue and I experience these symptoms on the daily. When I 1st knew something was wrong was my 1st clinical event that happe...

I’m struggling with the thoughts of when I want to start trying for a baby next year. I’m in college and graduate in September and I always said I wanted to start trying once I’m finished college but now that I’m on Gilenya everything has to be planned. Ideally I don’t want to finish college off my ...

Hey guys, I’m due to have my second infusion of ocrevus next month (so my first one was 6 months ago) and I’m feeling increasingly rubbish! Was on tecfidera previously and felt my usual healthy self but my MRIs showed progression so I was switched to ocrevus. I continued to feel healthy until the ...

Hi, first time I have posted but am having tough day. Am 50 but don’t like to think I look it or feel it, in my head at least. Diagnosed rrms in Jan this year (2020). It was actually good to have reason for so many things gone wrong with my health over many years. Am generally not too bad, bladder ...

good afternoon everyone it's been a while since I last posted anything! My neurologist didn't give me anything new to help my ms she still prescribed me copaxone and she said to stop taking it for a few months and then start taking it again! Since I stopped taking it I have been feeling great having...