Just back from infusion #5 of tysabri and doesn’t seem to be making any difference at all......
Still original symptoms and new symptoms
Anyone In same boat...?
Also whilst I’m on, anyone got recommendations on CPD vapes?
I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...
I am not trying to be a party pooper here. Why would I? I wrote a bit about them here https://shift.ms/topic/doms-covid-diary-sat-25th-apr
This is an excellent piece from a pharmaceutical market analyst. These folk really don't care about you or me, they are in it for the money. End of.
Have a re...
I’ve had bladder issues for the past 5 years and had just started to get things under control with Intermittent catheterisation, medication for overactive bladder and accupuncture. Over the last couple of months things seem to be getting worse again. The anxiety I feel over this is so overwhelming a...
Hi! I’m Aimee and I’m new to Shift.ms, I’ve just joined the team as the Community Intern. I’m here to listen to your stories and hopefully share some of them through various media across the site.
If you’re up for a chat, please feel free to drop me a message- it would be great to get to know you ...
Hi. I'm Constance. I was diagnosed with PPMS in 2010 but had symptoms 5 years prior. I retired in 2013 due to too many symptoms. I'm about to turn 64 and walk with a cane. I take High dosage biotin, use the Fasting Mimicking diet almost every day. I'm gluten free and try to stretch/ exercise daily.
Hello I've been recently diagnosed, I'm still getting my head round it, fed up with the chronic pain, I'm working mum with two kids. My MS Nurse is coming to see me next week. I feel like people that don't have MS don't really get it. If I say I'm tired they say oh I am too, erm it's not the same!!...
Hi I’m looking for some advice if poss.... I have been on copaxone for 10 years and the sight reactions are much worse which has made me seek alternative DMTs. I’ve chosen Tecfidera and got the green light so just waiting on starting. My issue is I work in public facing role for civil service and h...
I developed ITP (low platelets) and low white count 3 years after Round 2 of Lemtrada. It has been 7 months now and I am taking Promacta for my low platelet counts. My neutrophils are staying low and currently are 0.1. Has anyone else developed ITP or low white counts that lasted this long?