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@Lisamarie@6 

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Lisamarie@6

Tysabri infusion

Hi , I had my first Tysabri infusion on Wednesday . I felt fine after it & just felt a bit tired. I’m feeling a little off balance when I’m walking since yesterday. Just wondering if anyone experienced anything similar after infusion . Thanks

@ciara1982 

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ciara1982

Diagnosis

Hi I have had a recent mri identifying inflammation on both spinal cord and brain. I’m seeing neurologist on Friday. Did anyone get a diagnosis with the same mri result? My symptoms are weak left leg, tingling in right hand and poor balance. I also tend to be very sensitive to alcohol.

@BeeFirefly 

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BeeFirefly

Seeking advice

Hi there im just wanting some advice and help really. In a nut shell I am 25 years old and had this illness since just shy of my 16th birthday (great gift that was) anyway last year after my birthday i suffered a miscarried (first time pregnant as well) and that sent me down a dark dark hole anyway ...

@Mich 

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Mich

Copaxone rashes

Hi all, I started on copaxone 4 weeks ago. The first two weeks went really well & I had no side effects. Since then every time I have injected I’ve come out in a hot red swollen rash, which has then turned into a hard lump, like a marble (sometimes bigger) in the injection site. Has anyone e...

@nicole_kelly 

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nicole_kelly

Symptoms

I felt really good today, i didn't do much just played some video games but by 6pm i was exhausted. i lay down for a nap but i woke up exhausted, dizzy and it felt like my heart beat was in my head i could hear and feel it. it this common and caused by MS?

@Dawson.McWatch 

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Dawson.McWatch

Lions mane mushrooms

Has anyone ever heard of lions mane mushrooms? They are suppose to help with brain repair? I've heard that it helps rebuild the myelin sheets. Has anyone else heard anything about it?

@Jeslyn_Mauriello 

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Jeslyn_Mauriello

Tecfidera and child-bearing?

There’s quite a bit of literature online for this, and I will be talking to me doctor of course. But as I am on Tecfidera, I was hoping one of you on my team would have a word for me in regard to taking the medication while A) trying to conceive B) while breastfeeding. I know you don’t take the me...

@dalebrooks 

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dalebrooks

Symptoms before diagnosis how long?

My doctor told me that I have dormant multiple sclerosis meaning that I have the gray areas in my head and most of the symptoms but not the bands in my spine. My question is : is it normal to have symptoms for years before a real diagnosis? My dr told me that dormant ms isn’t a real diagnosis. So as...

@pinkcandystick 

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pinkcandystick

Swatting MS with a stick!

Hi friends. It's been a while since I posted so I'll give you a quick run down. I went off all ms meds in sept of last year due to having a 1 in 100 chance of contracting PML. Then in december I had a flair up that had me in bed until march. It was horrific to say the least. So in march I started my...

@HelenJR 

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HelenJR

Unsolicited advisors

Just went to the dentist and saw the dental hygienist. She asked if anything had changed with my health so I mentioned being recently diagnosed with MS. She didn't say anything. AT ALL. For 30 minutes until the appointment was over at which point she launched into a talk on functional medicine and t...