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@pinkcandystick 

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pinkcandystick

Swatting MS with a stick!

Hi friends. It's been a while since I posted so I'll give you a quick run down. I went off all ms meds in sept of last year due to having a 1 in 100 chance of contracting PML. Then in december I had a flair up that had me in bed until march. It was horrific to say the least. So in march I started my...

@HelenJR 

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HelenJR

Unsolicited advisors

Just went to the dentist and saw the dental hygienist. She asked if anything had changed with my health so I mentioned being recently diagnosed with MS. She didn't say anything. AT ALL. For 30 minutes until the appointment was over at which point she launched into a talk on functional medicine and t...

@A_Girls_Gotta_Eat 

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A_Girls_Gotta_Eat

Lymph nodes and MS

Hello I hope everyone is doing well ! I was just wondering if anyone else has experienced hard lumps under the skin !? I spoke to my GP and he told me it could be a cyst or my lymph nodes and I think it is my lymph nodes. Does anyone know how this correlates with Ms ?

@Ray_Thomas 

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Ray_Thomas

Eyes

Hi Since my last relapse , a year ago in May - my eyes have been a real problem. not double vision as such.., I assume its just a mild version of my vertigo , that never went away It's worse if i have been in a room for a while then go out side ! looking around and left to right quickly is a no no...

@SBGill91 

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SBGill91

Tyasbri

Just back from infusion #5 of tysabri and doesn’t seem to be making any difference at all...... Still original symptoms and new symptoms Anyone In same boat...? Also whilst I’m on, anyone got recommendations on CPD vapes?

@Constance56 

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Constance56

Hello all!

I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...

A Vaccine is 12-18mo Away, At Best

I am not trying to be a party pooper here. Why would I? I wrote a bit about them here https://shift.ms/topic/doms-covid-diary-sat-25th-apr This is an excellent piece from a pharmaceutical market analyst. These folk really don't care about you or me, they are in it for the money. End of. Have a re...

@kittyks 

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kittyks

TreAtment

Hi guy I was wondering if you have treatment for Ocreus do you have to shield or can return back to work... Please let me know Thank you

@aimeemcw0505 

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aimeemcw0505

Dreaded bladder issues

I’ve had bladder issues for the past 5 years and had just started to get things under control with Intermittent catheterisation, medication for overactive bladder and accupuncture. Over the last couple of months things seem to be getting worse again. The anxiety I feel over this is so overwhelming a...

@Aimee 

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Aimee

New to the Shift.ms team

Hi! I’m Aimee and I’m new to Shift.ms, I’ve just joined the team as the Community Intern. I’m here to listen to your stories and hopefully share some of them through various media across the site. If you’re up for a chat, please feel free to drop me a message- it would be great to get to know you ...