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Hi guys. First post, so here goes - I've gone from R/R to PPMS. It's a bit frightening but it's nice to talk to people who understand. I've been put on the W/L for Rituximab infusions although from what I'm reading the results aren't great for PPMS - anyone here have any experience? I'm determin...

What are people’s views on travel at the moment? I’m due to go to Amsterdam with my friend for a few days in August. Obviously I’ll be vigilant with hand washing and social distancing where possible but I can’t imagine the place will be heaving with folk like it usually is. Am I being too fearless? ...

I am arranging a Midland get together Sunday 30th August 11.00 start but relaxed, it is a big hotel so those that want to distance its good, free WiFi so if you need to bring family there is TV and comfortable seating. I will be posting on Facebook and Twitter too so make a note, all MSers welcome, ...

Finally started treatment I thought it was going to be alot worse than it has been so I'm grateful for that. Or they given me placebo. February is always a though month for me it's the last month I got to speak to my mum. She had MS. Died 2018 it feels like longer. It's still strange to me. Anyw...

I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...

Hi. I'm Constance. I was diagnosed with PPMS in 2010 but had symptoms 5 years prior. I retired in 2013 due to too many symptoms. I'm about to turn 64 and walk with a cane. I take High dosage biotin, use the Fasting Mimicking diet almost every day. I'm gluten free and try to stretch/ exercise daily.

Hello I've been recently diagnosed, I'm still getting my head round it, fed up with the chronic pain, I'm working mum with two kids. My MS Nurse is coming to see me next week. I feel like people that don't have MS don't really get it. If I say I'm tired they say oh I am too, erm it's not the same!!...

The next Wobble will again be on Zoom (due to the plague) on 16th August at 11am.details will follow

I’m struggling with the thoughts of when I want to start trying for a baby next year. I’m in college and graduate in September and I always said I wanted to start trying once I’m finished college but now that I’m on Gilenya everything has to be planned. Ideally I don’t want to finish college off my ...

Hey guys, I’m due to have my second infusion of ocrevus next month (so my first one was 6 months ago) and I’m feeling increasingly rubbish! Was on tecfidera previously and felt my usual healthy self but my MRIs showed progression so I was switched to ocrevus. I continued to feel healthy until the ...