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Meeting

I am arranging a Midland get together Sunday 30th August 11.00 start but relaxed, it is a big hotel so those that want to distance its good, free WiFi so if you need to bring family there is TV and comfortable seating. I will be posting on Facebook and Twitter too so make a note, all MSers welcome, ...

Mavenclad anyone else on it

Finally started treatment I thought it was going to be alot worse than it has been so I'm grateful for that. Or they given me placebo. February is always a though month for me it's the last month I got to speak to my mum. She had MS. Died 2018 it feels like longer. It's still strange to me. Anyw...

@Constance56 

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Constance56

Hello all!

I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...

@Constance56 

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Constance56

Just Joined

Hi. I'm Constance. I was diagnosed with PPMS in 2010 but had symptoms 5 years prior. I retired in 2013 due to too many symptoms. I'm about to turn 64 and walk with a cane. I take High dosage biotin, use the Fasting Mimicking diet almost every day. I'm gluten free and try to stretch/ exercise daily.

Newbie here!!

Hello I've been recently diagnosed, I'm still getting my head round it, fed up with the chronic pain, I'm working mum with two kids. My MS Nurse is coming to see me next week. I feel like people that don't have MS don't really get it. If I say I'm tired they say oh I am too, erm it's not the same!!...

Zoom wobble

The next Wobble will again be on Zoom (due to the plague) on 16th August at 11am.details will follow

@Ciara_Fisher 

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Ciara_Fisher

Gilenya and Pregnancy

I’m struggling with the thoughts of when I want to start trying for a baby next year. I’m in college and graduate in September and I always said I wanted to start trying once I’m finished college but now that I’m on Gilenya everything has to be planned. Ideally I don’t want to finish college off my ...

@sofyg 

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sofyg

Ocrevus running out

Hey guys, I’m due to have my second infusion of ocrevus next month (so my first one was 6 months ago) and I’m feeling increasingly rubbish! Was on tecfidera previously and felt my usual healthy self but my MRIs showed progression so I was switched to ocrevus. I continued to feel healthy until the ...

@1of3 

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1of3

Tests before symptoms

My name is karen. I was born in England. I will be 43, this year. I had three older siblings. All of them were born three years apart... Five years later I was born. Back in 2002-03, my second oldest sister started having symptoms. It took along time for her diagnosis. By 2020, and my sister can do...

@Feloreena 

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Feloreena

Slow recovery from Optic Neuritis?

Hi everyone, hope you are all doing well. :) I am interested to hear about people's experiences with Optic Neuritis, and in particular those who have had a slow recovery from it. My own story - I got an attack of Optic Neuritis in my left eye in June this year. It started off with some mild pain a...