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@Tanya_Trenholm 

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Tanya_Trenholm

Ocrevus: delaying v shielding

This is a long post, so I apologise in advance. I was due to have my first full dose of ocrevus at the end of March. Having made contact with my MS team in the weeks leading up to this to check that I should still go ahead in the current climate (Coronavirus), I repeatedly got the answer back that m...

@lillibet23 

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lillibet23

Covid and work

Hi all I have rrms and I take fingolimod for this I work as a nurse on the front line , my ms nurse advised that I self isolate for 12 weeks at the beginning of coronovirus but I stayed at work until 2 weeks ago and my manager signed me off on medical suspension due to risk as icu became all covid...

@fuzzyjonclay 

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fuzzyjonclay

Tips on buying a bike

Hi everyone For a while now I've thought about purchasing a bike in order to get in some decent exercise. I'm not great at walking long distances (due to my RRMS), so I was looking for another avenue. However, I'm on holiday at the moment and I thought I'd try out my mother-in-law's bike.... the re...

Returning to work

I’m returning to work next week after 4 months of furlough. My job entails some lifting of items up and down the stairs and since being off my mobility and strength has deteriorated somewhat. Any advice on how I can speak to my employer about these issues as a little worried about broaching this sub...

@pauley 

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pauley

Thankful

Hi there, I just finished my 1st cycle of Mavenclad treatment...free now for 4 weeks before the next lot No real side affects...just a little exhausted...more than the usual kind I could feel burning sensation while swallowing the medication..make sure anyone taking this medication has plenty of w...

@SallyMartin 

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SallyMartin

Just Aaarrrggghhh!

So am divorced from my ex, which is fine! But now he has taken our children, 2 boys, off me because apparently I am an unfit mother! Yes, I have m.s, yes I like an alcoholic beverage occasionally but HE has dictated to all, that disabled people shouldn't drink! Aaarrrggghhh! Court case online on tue...

@A_Girls_Gotta_Eat 

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A_Girls_Gotta_Eat

Diet and MS

Hey guys I’m in need of urgent help! I’ve had extreme bloating and abdominal discomfort for as long as I can remember ! The doctors have ran all the tests and don’t know what’s wrong :( I was wondering if anyone follows a certain diet that might help with this because I have a feeling it’s connected...

@newbie 

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newbie

DMT and work

Hi all, hope you are keeping well and safe in these unusual times. I am newly diagnosed in March, first symptoms 18 months ago and 1 minor relapse 6 months ago. Other than that I am lucky not to have any symptoms of note. I discussed with my MS nurse DMT drugs early March and my neurologist recom...

@Marian_Kiely 

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Marian_Kiely

MS, The 'Gift' That Keeps on Giving ...

Hi guys. First post, so here goes - I've gone from R/R to PPMS. It's a bit frightening but it's nice to talk to people who understand. I've been put on the W/L for Rituximab infusions although from what I'm reading the results aren't great for PPMS - anyone here have any experience? I'm determin...

@Hlyndar89 

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Hlyndar89

Travel and Covid19

What are people’s views on travel at the moment? I’m due to go to Amsterdam with my friend for a few days in August. Obviously I’ll be vigilant with hand washing and social distancing where possible but I can’t imagine the place will be heaving with folk like it usually is. Am I being too fearless? ...