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My name is karen. I was born in England. I will be 43, this year. I had three older siblings. All of them were born three years apart... Five years later I was born. Back in 2002-03, my second oldest sister started having symptoms. It took along time for her diagnosis. By 2020, and my sister can do...

Hi everyone, hope you are all doing well. :) I am interested to hear about people's experiences with Optic Neuritis, and in particular those who have had a slow recovery from it. My own story - I got an attack of Optic Neuritis in my left eye in June this year. It started off with some mild pain a...

Social distancing is vital to stop covid-19 but it seems that no thought was given to people with reduced or limited mobility. Entrances closer to parking have been closed to limit access so I had to go to the only entrance at the other side of the building. No air cons to not spread the virus are n...

I am wondering if anyone has seen either a geneticist or immunologist in the context of your MS. My brother is encouraging me to go, and he is also encouraging me to eat a keto diet. He doesn't quite articulate what he thinks these other doctors can do for me. My brother reads a lot of books about h...

I have a conflict of interest to declare: I am on the UK MS Register committee. - The MS Register here struggles to get more sign-ups. Everything you share is to further the cause of MS research. Your data is secured properly and never ever shared, outside of the anonymised research data. - The Fre...

I have a prism on my glasses to correct diploplia(double vision). Every 6 months the diploplia is checked and if required the Prism strength is adjusted. The Eye Clinic has given me my next appointment which is (because of the pandemic) a telephone appointment. I understand the whole safety and dist...

I'm fed up with the laced sensible shoes I need to wear and was SO pleased to discover very cleverly-made smart shoes while on holiday. It's a New Zealand manufacturer but I've found a British supplier. PM me if you want details.

So I’m waiting for a diagnosis of various symptoms. I had an appointment via video link at home with a neurologist and I just feel like I messed it up. I’ve been waiting for 6 months , in pain , and I couldn’t articulate my symptoms . He asked me if it’s there all the time or now and again - I an...

I have a relatively decent diet and try to look after myself the very best way I can, but when JUSTEAT comes knocking on my brain, I surrender in purchasing everything I see. Mexican, Chinese, Indian. I can be quite the pig when it comes down to it, yet I can't put the weight on. :( Have a great ni...

Hey all, Hope everyone is well. Been not doing to bad here the last little while. Excluding today. But the last I don’t know 5 weeks or so now been feeling pretty good. Been getting stuff done outside that hasn’t been able to get done in the last 3 years. So was a lot of work. Also had to move ...