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@Annie_Edlington 

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Annie_Edlington

Work life balance

At the moment my fatigue is through the roof. I am currently working full time but spend most of the weekends in bed or on the couch. I’ve thought about reducing my hours and doing a 9 day fortnight for a while but I’m not sure if this would help me. Has anyone found reducing their work hours ben...

@DesN 

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DesN

Sleep.... I really miss you!

Hi all...... I had a really good friend once called sleep... however since MS came along we seem to have grown apart! Share your miracle cures to get us back together again! Pleeeease...... I really miss him

Mavenclad Success

Hello! I’m one of the very blessed US patients receiving Mavenclad (and for free!!). I started my first round almost a month ago and start the second (and final for the year) in a week. So far so good and I’m pleasantly surprised by how few side effects I’ve experienced. While I expect that the ensu...

@beky 

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beky

Advice/slight rant!

Hi all, hope everyone is doing ok Slightly confusing situation here: i got diagnosed with RRMS in 2018. I had a brain and neck/spine MRI and my brain looked normal but i had 3 lesions on my C spine which accounted for my symptoms. Fast forward to a few a weeks ago and my neuro sent me for another MR...

@hayleyc85 

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hayleyc85

Tysabri cylce change

Hi - i’ve just had a letter through to say my Tysabri infusions are changing from 4-6 weeks due to covid 19. I REALLY feel like im due my treatment when i get into that last week, my life just ends up in slo mo. Fatigue, cog fog, mood & irritability are all at their worst in that week. So to g...

Newly diagnosed - advice please!

I was dx (RRMS) over the phone on July 24th, a year after the symptoms which led to initial referral by GP to Neurology. Consultant said he was 'anxious to start treatment'. I was given two weeks to decide between Aubagio and Tecfidera. Told if I chose not to have treatment I'd be discharged back in...

Newly diagnosed - UK MSers advice please

I was dx (RRMS) over the phone on July 24th, a year after the symptoms which led to initial referral by GP to Neurology. Consultant said he was 'anxious to start treatment'. I was given two weeks to decide between Aubagio and Tecfidera. Told if I chose not to have treatment I'd be discharged back in...

Newly diagnosed - UK MSers advice please

I was dx (RRMS) over the phone on July 24th, a year after the symptoms which led to initial referral by GP to Neurology. Consultant said he was 'anxious to start treatment'. I was given two weeks to decide between Aubagio and Tecfidera. Told if I chose not to have treatment I'd be discharged back in...

@Alex_Bolland 

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Alex_Bolland

Never given a chance.

I have primary progressive MS, and have been trying for a long time to get access to ocreveus, they tell me you have to have recent activity in your brain or you will not get it, i feel my condition has worsened and surely this treatment is worth trying whether you have any brain activity or not, i ...

@Bigpeg88 

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Bigpeg88

Tysabri changes...

Hi guys hope everyone is keeping safe in this new world order we are going through! I am writing this post as I have rrms and have been receiving natalizumab ( tysabri ) at monthly treatments for last 9 years and I am switching to every 6 weeks instead of 4. Can anyone out there describe in any wa...