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30th Aug Sunday Meeting

This coming Sunday at the Holiday Inn, Kidderminster Road, Bromsgrove B61 9AB is a MS meeting, all welcome, free parking, good coffee and hopefully an interesting meet up. www.wholesorts.com take a read of my blogs as I am sure you will enjoy

@JoyceG. 

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JoyceG.

Burning mouth and tongue

Hi! Does anyone have burning mouth and tongue problems..? Occasionally I feel pins and sort of tickling. Sometimes even my throat burns and my theeth hurt.! It's not my stomach, they've examined that. The only thing that helps a bit for a while is an Oxazepam.. Anyone, suggestions..? Thnxx

@Bobbij 

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Bobbij

Spinal tap

I'm going for a spinal tap in 6 weeks or so, been doing some reading about the procedure and after care, what has been anyone's experience after having one done. Seems to be alot of complain g of back pain and headache

@VanBax 

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VanBax

Amantadine

Hi all. Does anyone have any experiences of taking Amantadine for MS fatigue. I am currently taking modafinil x 2 100g first thing each day but still suffer from chronic fatigue in the afternoons. MS Nurse has recommended switching to Amantadine. I’m happy to switch but reluctant to give up moda...

@Bobbij 

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Bobbij

Benign MS

I was just diagnosed with benign MS not quite sure about it as of yet, all I know is my symptoms with Tingling in the scalp, right arm, pain in those areas also plus right leg, are very real, but I guess will know more once I get to see the MS specialist

@CeeLYnn 

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CeeLYnn

Anyone else

Hi everyone! I hope you are all doing well! I’m writing this bc I am an RN and I worked in Urgent Care working 12 + hours three days a week, and I accepted a new job working in outpatient surgery (better hours, pay, and health insurance benefits) I’m nervous bc I am new to working in surgery. Are th...

@angieH 

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angieH

New lesion

Just received result of annual MRI of brain and CSP. Quick recap is diagnosed w MS 1998. No DMT or identifiable symptoms until 2017, been on copaxone for 3 years. Most recent MRI says new lesion r fr lobe, and a Highlighting peri ventricular lesion which is also new. I’m feeling a bit alarmed! I ...

@Annie_Edlington 

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Annie_Edlington

Work life balance

At the moment my fatigue is through the roof. I am currently working full time but spend most of the weekends in bed or on the couch. I’ve thought about reducing my hours and doing a 9 day fortnight for a while but I’m not sure if this would help me. Has anyone found reducing their work hours ben...

@DesN 

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DesN

Sleep.... I really miss you!

Hi all...... I had a really good friend once called sleep... however since MS came along we seem to have grown apart! Share your miracle cures to get us back together again! Pleeeease...... I really miss him

Mavenclad Success

Hello! I’m one of the very blessed US patients receiving Mavenclad (and for free!!). I started my first round almost a month ago and start the second (and final for the year) in a week. So far so good and I’m pleasantly surprised by how few side effects I’ve experienced. While I expect that the ensu...