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I have primary progressive MS, and have been trying for a long time to get access to ocreveus, they tell me you have to have recent activity in your brain or you will not get it, i feel my condition has worsened and surely this treatment is worth trying whether you have any brain activity or not, i ...

Hi guys hope everyone is keeping safe in this new world order we are going through! I am writing this post as I have rrms and have been receiving natalizumab ( tysabri ) at monthly treatments for last 9 years and I am switching to every 6 weeks instead of 4. Can anyone out there describe in any wa...

Hi was just diagnosed with MS, but going back on the last few years it has affected much longer than just finding out now. My brother has lived with MS for over 40 years. So MS is nothing new to me except learning to live with it myself now, one day at a time. Thanks and take care folks

So basically I know it’s going to be a bad day when I wake up with what I call heavy eyes. Has anyone had this symptom with MS? My eyelids feel weighted and so I have to struggle to keep them open. This will last all day. I do some eye movement exercises like moving my eyeballs in all directions,...

Hi folks. I was diagnosed with MS 2018. I've recently retired on health grounds and have just been granted PIP which is a great help. I'm very reluctant to visit anywhere where I dont know where the nearest loo is. Nightmare in the current climate !!! (covid19) Mobility is a problem re walking and b...

Hello! I think I need advice from someone a bit more experienced than me. Does any of you have both glaucoma and MS? How do you get it diagnosed? After my recent optic neuritis (in march) my optician suggested a week ago that I might have glaucoma, but that she is not certain, as it damages nerves i...

I just joined yesterday and I just wanna say how absolutely amazing this site is. I've been fairly unphased by my recent diagnosis, probably because I've known there's something not quite right with me for a while so when I found out it's something that isn't terminal like cancer or motor neuron dis...

Morning all, I've been med free for 15+ years since diagnosis but a couple of recent relapses (including my first learning to walk again episode) have put me on a treatment plan. I'm due to start taking tecfidera soon and wondered how it may affect my exercising? I currently cycle on a static trai...

Hi there have any of you had any experience with cbd oil ? Does it work for anyone ? Very curious about this ,and do you take it along side other meds or not ? I know this is not medical registered. But researching it. It looks like it’s very helpful. Any views appreciated

Does anyone else feel like going camping in Antarctica & relaxing with an ice cream?