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@DesN 

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DesN

Fun day out 🙂

Heres a good one! Decided to take my 16 year old boy to Alton Towers for the day about 6 weeks ago... nice bit of son Dad time... took advantage of the fact that you can use the disabled card to book my son in as my carer for the day for free... well why shouldnt I hear you say. When I got to the g...

A virtual future: MS Care

https://www.youtube.com/watch?v=mzaidLfVgSY&feature=youtu.be The world 🌍 of health is adapting to an entirely new way of operating, including switching to digital delivery of care and telemedicine. But what does this mean practically for people with MS? 🤔💭 In episode 1 of this miniseries, we’re ...

Thought please

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

30th Aug Sunday Meeting

This coming Sunday at the Holiday Inn, Kidderminster Road, Bromsgrove B61 9AB is a MS meeting, all welcome, free parking, good coffee and hopefully an interesting meet up. www.wholesorts.com take a read of my blogs as I am sure you will enjoy

@JoyceG. 

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JoyceG.

Burning mouth and tongue

Hi! Does anyone have burning mouth and tongue problems..? Occasionally I feel pins and sort of tickling. Sometimes even my throat burns and my theeth hurt.! It's not my stomach, they've examined that. The only thing that helps a bit for a while is an Oxazepam.. Anyone, suggestions..? Thnxx

@Bobbij 

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Bobbij

Spinal tap

I'm going for a spinal tap in 6 weeks or so, been doing some reading about the procedure and after care, what has been anyone's experience after having one done. Seems to be alot of complain g of back pain and headache

@VanBax 

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VanBax

Amantadine

Hi all. Does anyone have any experiences of taking Amantadine for MS fatigue. I am currently taking modafinil x 2 100g first thing each day but still suffer from chronic fatigue in the afternoons. MS Nurse has recommended switching to Amantadine. I’m happy to switch but reluctant to give up moda...

@Bobbij 

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Bobbij

Benign MS

I was just diagnosed with benign MS not quite sure about it as of yet, all I know is my symptoms with Tingling in the scalp, right arm, pain in those areas also plus right leg, are very real, but I guess will know more once I get to see the MS specialist

@CeeLYnn 

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CeeLYnn

Anyone else

Hi everyone! I hope you are all doing well! I’m writing this bc I am an RN and I worked in Urgent Care working 12 + hours three days a week, and I accepted a new job working in outpatient surgery (better hours, pay, and health insurance benefits) I’m nervous bc I am new to working in surgery. Are th...

@angieH 

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angieH

New lesion

Just received result of annual MRI of brain and CSP. Quick recap is diagnosed w MS 1998. No DMT or identifiable symptoms until 2017, been on copaxone for 3 years. Most recent MRI says new lesion r fr lobe, and a Highlighting peri ventricular lesion which is also new. I’m feeling a bit alarmed! I ...