Sort 92 results by

Page 8

@Katherineee 

Last reply

Katherineee

COVID Concerns

Hello MSers, I haven't posted in a while but I wanted to talk about COVID19. Is anyone else worried about not receiving their treatment? I'm on ocrevus and doctors have stopped my treatment as it can suppress my immune system, however, they have also confirmed that the ocrevus inside my body will ...

@mj2000uk 

Last reply

mj2000uk

New symptom - internal tremor.

Over the last couple of months I seem to have developed a new symptom. I now feel like the inside of my body is shaking but the outside of my body is not! I spoke to my MS nurse and they did not seem overly concerned with this. however, I notice it more and more and it is beginning to drive me slig...

New treatment Ocrelizumab or Mavenclad

My neurologist has suggested Ocrelizumab or Mavenclad. He saidBoth are equally effective. Ocrelizumab is 6monthly infusion, while Mavenclad is oral medication-a 2year-course treatment, with 20day-doses over 2year period. Confused? Can I ask members for their experience with either treatments 🤔

@Murray 

Last reply

Murray

Ocrevus

Hi Has anyone had any news regarding DMT treatments in the UK now? My MS nurse is waiting to hear when they might be able to re-start, and I am on the list for the initial Ocrevus infusion - hoping this will be soon, of course.. Wishing you all well.

Feeling better or worse after infusions?

<p>Hi,</p> <p>I just had my latest infusion of Rituxan (after a COVID delay), and I always feel terrible afterward, but I’ve heard people say they feel better after treatment. Is this a case of “no two the same,” because of different DMTs, a combo? Just curious as I sit here in my post-infusion blah...</p>

@mser79 

Last reply

mser79

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...

The restarting of Ocrevus after coronavirus delay

Hi After 4 years on alemtuzumab I was due to move to Ocrevus (following breakthrough activity) in April. Bad timing. I'm treated at the National Hospital for Neurology and Neurosurgery, and was told yesterday that infusions the new patients might not be available until September/October. A huge cau...

Daily Briefing Covid-19 [Apr 20th &#039;20]

<p>Afternoon all,<br> –<br> Not sure when I ought to drop the Covid-19 tag from the headline. I think it should last as long the lockdown lasts. We see the conversation subtly changing now to more of the looking ahead. You can’t panic forever.<br> ——<br> MS Stuff<br> R...</p>

Lemtrada, covid and MRI

So at the moment I am about 16 months post r2 of lemtrada, and my MRI was due in April, but it has now been postponed until ... further notice... This gave me immense anxiety and I’ve been having panic attacks for over a month now. I don’t know how to deal with this because even though I appear st...