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@ncm22 

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ncm22

Brainstem relapse help please ?

Hi everyone, I have just read something about brainstem lesion. In 2018 before I started any treatment, I had a brainstem relapse that caused numbness on face and tongue, and reduced hearing. I am quite worried about this, as I believe if you have a relapse in that area, it is a part of the brain...

@Erika_Rosas 

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Erika_Rosas

Pregnancy and MS

Hi my name is Erika Iam 32 years old, I was diagnosed in 2012, am taking tysabri. I got married two years ago( I have a 14 year old son now, doctor said am stable and am good to start planning on having a baby but for that I would have to change my treatment to Ritaxon, I’ve read it’s good to start ...

@Wayne_Kirby 

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Wayne_Kirby

Copaxone

Hi everyone I have had RRMS for 15years and have been relatively well but getting worse recently I'm due to start my copaxone treatment with the first delivery Monday and a nurse coming after that but have now been told it wont be with auto injector and I thought it was supposed to be as my hands sh...

@supermum1983 

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supermum1983

Massage

I used to get a massage every month as I have chronic pain in my back, with covid Ive not had one for ages but Im concerned because I cant never have a massage ever again. But I'm concerned, you obviously cant social distance when having a treatment unless they are wearing ppe?? Anyone else get tr...

@dinnerlady 

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dinnerlady

Treatment help

Hi everyone hope all are keeping safe .Just had a letter from the my M.S. Nurse Informing me my Ocrevus Infusion has been rescheduled to July ( original one cancelled due to virus) I was also told I may be more susceptible to the virus and also may be unable to accept a vaccine for the Virus should ...

@pinkie100 

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pinkie100

Tysabri - few symptoms but new lesions

I was diagnosed in June 2019 having woken up with pins and needles in my hands in January. No previous symptoms. Pins and needles extended to whole body from chest down and I experienced MS hug a few times. After a couple of months things seemed more or less back to normal and although the pins and ...

@Shannon_OHara 

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Shannon_OHara

% suppressed

How much of your immune system do you think is not suppressed? If you know about some research or info I'd love to read. Perhaps 20-40% I'd guess is active seeing as treatment is labeled as causing a low immune system.

@laurainiho 

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laurainiho

Re starting treatment

Hello, So I got diagnosed with rrms last August, started on ocrevus in October. I was supposed to have the next infusion in March but it was cancelled because of coronavirus. My ms nurse rang me yesterday to say my treatment is happening next month- great! But due to covid19 I will have to isolate...

@CarolO 

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CarolO

Treatment plan

Only recently diagnosed (7 months ago) & I’d like opinions on my medication please. My MS nurse prescribed 10mg of Baclofen,one to be taken each night along with 30mg of Duloxetine,one at night for a week building up to two twice a day. I stopped both after a week as was experiencing such a mugg...

@Cassie_Farrugia 

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Cassie_Farrugia

Feeling lost

Hi everyone, I hope you’re all well! I’m feeling a little lost at the moment. I gave birth to my beautiful baby boy 9 weeks ago - unfortunately my epidural was placed in the wrong spot and wasn’t picked up until I went completely numb from the waist down and needed to be moved with a sliding she...