gf.me/u/x7wuvv
I have Ms / nmo and it is very severe with repeated attacks of optic neuritis and leg weakness
At this point I am desperate to try anything
Please can people donate
Thank you
Well, one month on Copaxone and I've had to quit because of the injection site reactions getting too much. It's left dark marks on both hips, my stomach and left a dent in my left thigh after only injecting once. Glad I'm off it. How people could put themselves through that for years I have no idea....
Hi everyone,
I have just read something about brainstem lesion.
In 2018 before I started any treatment, I had a brainstem relapse that caused numbness on face and tongue, and reduced hearing.
I am quite worried about this, as I believe if you have a
relapse in that area, it is a part of the brain...
Hi my name is Erika Iam 32 years old, I was diagnosed in 2012, am taking tysabri. I got married two years ago( I have a 14 year old son now, doctor said am stable and am good to start planning on having a baby but for that I would have to change my treatment to Ritaxon, I’ve read it’s good to start ...
Hi everyone I have had RRMS for 15years and have been relatively well but getting worse recently I'm due to start my copaxone treatment with the first delivery Monday and a nurse coming after that but have now been told it wont be with auto injector and I thought it was supposed to be as my hands sh...
I used to get a massage every month as I have chronic pain in my back, with covid Ive not had one for ages but Im concerned because I cant never have a massage ever again. But I'm concerned, you obviously cant social distance when having a treatment unless they are wearing ppe??
Anyone else get tr...
Hi everyone hope all are keeping safe .Just had a letter from the my M.S. Nurse
Informing me my Ocrevus Infusion has been rescheduled to July ( original one cancelled due to virus) I was also told I may be more susceptible to the virus and also may be unable to accept a vaccine for the Virus should ...
I was diagnosed in June 2019 having woken up with pins and needles in my hands in January. No previous symptoms. Pins and needles extended to whole body from chest down and I experienced MS hug a few times. After a couple of months things seemed more or less back to normal and although the pins and ...
How much of your immune system do you think is not suppressed? If you know about some research or info I'd love to read.
Perhaps 20-40% I'd guess is active seeing as treatment is labeled as causing a low immune system.
Hello,
So I got diagnosed with rrms last August, started on ocrevus in October. I was supposed to have the next infusion in March but it was cancelled because of coronavirus. My ms nurse rang me yesterday to say my treatment is happening next month- great! But due to covid19 I will have to isolate...