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@dinnerlady 

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dinnerlady

Treatment help

Hi everyone hope all are keeping safe .Just had a letter from the my M.S. Nurse Informing me my Ocrevus Infusion has been rescheduled to July ( original one cancelled due to virus) I was also told I may be more susceptible to the virus and also may be unable to accept a vaccine for the Virus should ...

@pinkie100 

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pinkie100

Tysabri - few symptoms but new lesions

I was diagnosed in June 2019 having woken up with pins and needles in my hands in January. No previous symptoms. Pins and needles extended to whole body from chest down and I experienced MS hug a few times. After a couple of months things seemed more or less back to normal and although the pins and ...

@Shannon_OHara 

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Shannon_OHara

% suppressed

How much of your immune system do you think is not suppressed? If you know about some research or info I'd love to read. Perhaps 20-40% I'd guess is active seeing as treatment is labeled as causing a low immune system.

@laurainiho 

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laurainiho

Re starting treatment

Hello, So I got diagnosed with rrms last August, started on ocrevus in October. I was supposed to have the next infusion in March but it was cancelled because of coronavirus. My ms nurse rang me yesterday to say my treatment is happening next month- great! But due to covid19 I will have to isolate...

@CarolO 

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CarolO

Treatment plan

Only recently diagnosed (7 months ago) & I’d like opinions on my medication please. My MS nurse prescribed 10mg of Baclofen,one to be taken each night along with 30mg of Duloxetine,one at night for a week building up to two twice a day. I stopped both after a week as was experiencing such a mugg...

@Cassie_Farrugia 

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Cassie_Farrugia

Feeling lost

Hi everyone, I hope you’re all well! I’m feeling a little lost at the moment. I gave birth to my beautiful baby boy 9 weeks ago - unfortunately my epidural was placed in the wrong spot and wasn’t picked up until I went completely numb from the waist down and needed to be moved with a sliding she...

@Katherineee 

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Katherineee

COVID Concerns

Hello MSers, I haven't posted in a while but I wanted to talk about COVID19. Is anyone else worried about not receiving their treatment? I'm on ocrevus and doctors have stopped my treatment as it can suppress my immune system, however, they have also confirmed that the ocrevus inside my body will ...

@mj2000uk 

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mj2000uk

New symptom - internal tremor.

Over the last couple of months I seem to have developed a new symptom. I now feel like the inside of my body is shaking but the outside of my body is not! I spoke to my MS nurse and they did not seem overly concerned with this. however, I notice it more and more and it is beginning to drive me slig...

New treatment Ocrelizumab or Mavenclad

My neurologist has suggested Ocrelizumab or Mavenclad. He saidBoth are equally effective. Ocrelizumab is 6monthly infusion, while Mavenclad is oral medication-a 2year-course treatment, with 20day-doses over 2year period. Confused? Can I ask members for their experience with either treatments 🤔

@Murray 

Last reply

Murray

Ocrevus

Hi Has anyone had any news regarding DMT treatments in the UK now? My MS nurse is waiting to hear when they might be able to re-start, and I am on the list for the initial Ocrevus infusion - hoping this will be soon, of course.. Wishing you all well.