Sort 92 results by

Page 9

@Bigpeg88 

Last reply

Bigpeg88

Tysabri changes...

Hi guys hope everyone is keeping safe in this new world order we are going through! I am writing this post as I have rrms and have been receiving natalizumab ( tysabri ) at monthly treatments for last 9 years and I am switching to every 6 weeks instead of 4. Can anyone out there describe in any wa...

@Dawson.McWatch 

Last reply

Dawson.McWatch

Hand washing is a must

Is anyone worried about the whole coronavirus I’m starting to worry I already have a weak Immune system due to my MS treatment... would that make me variable to the virus because of that or am I just overthinking this?!? Get back to me in the comments what’s your opinion

Ocrevus stopped due to COVID19

I was supposed to have my first Ocrevus infusion today but it has been deferred in light of the coronavirus outbreak and I will be treated with Brabio for the time being instead. I had emailed some concerns to my hospital (The National Hospital for Neurology and Neurosurgery in London) as I was worr...

Mavenclad anyone else on it

Finally started treatment I thought it was going to be alot worse than it has been so I'm grateful for that. Or they given me placebo. February is always a though month for me it's the last month I got to speak to my mum. She had MS. Died 2018 it feels like longer. It's still strange to me. Anyw...

@pelican 

Last reply

pelican

Botox therapy?!

hi All, just wanted to ask if anyone’s had Botox treatment for their bladder? If so can you tell me the pros and cons as I’ve been advised it would be beneficial but quite apprehensive about the procedure

@Stumbler 

Last reply

Stumbler

Pain!!

There is a very good blog analysing pain, the causes and treatments, available here :- https://mirandasmsblog.com/2019/10/10/pain-in-ms-treatment-and-managment-options/

ocrevus

Hi, I'm a 49 year old man diagnosed with MS in August this year. My MS is most likely primary progressive and I have just been told I can start Ocrevus treatment next year. I'm getting pretty worried looking at the list of potential side effects and am wondering if anyone here has personal experienc...

Radiological/clinically isolated syndrom

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

@summy 

Last reply

summy

Dr Coimbra's vitamin d protocol

Hi I have recently been diagnosed with Ms and am reluctant to take medication and therefore have been looking into alternative treatments. I feel hopeful about Dr Coimbra's vitamin d protocol which has been backed up by many other doctors such as Dr Berg. I have started taking high doses of vitam...

Tecfidera/Lymphopenia fail. Next DMT?

Hi all, Seeking advice. Has anyone been taken off Tecfidera due to developing lymphopenia? If so, which DMT did you try next, and did your lymphocyte count remain stable with your next choice of treatment for RRMS? Anyone had the same adverse effect happening repeatedly despite trying differ...