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@seaairsally 

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seaairsally

Autoimmune Neutropenia after Lemtrada

Hi community, Does anyone have experience of neutropenia after Lemtrada? Horrid to have to deal with extra things on top of the MS. If anyone has I would love to hear if it’s reoccurred/needed treatment or went away naturally. Thanks, Sal

@AnnaKonuh 

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AnnaKonuh

puzzled

I signed a contract for conducting clinical trials of the drug. My relatives did not approve of my decision and each time they scared me with scary stories and the fact that I would be an experimental mouse🤷. In Ukraine, MS treatment is very expensive, and I think that for me this is a chance to ge...

@Francine@ 

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Francine@

Hi I am Francine

I was diagnosed with MS Nov 97 so nearly 23 years. I have been on various treatments . I am now on Ocrevus 6 monthly infusion. But because of COVID-19 my treatment has been delayed my last dose was the 26th September 2019 I was supposed to have my next dose In March . I just wanted to know if anyo...

@Elsa75 

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Elsa75

Psoriasis

Hi everyone. Apologies that my question is not MS related but as Psoriasis is also an autoimmune condition I'm hoping someone will have some advice. For the least 5 years, my friend has been struggling to get treatment or even get an appointment at the local NHS Trust because her "condition is not ...

@martinkelly 

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martinkelly

ppms treatments

I was diagnosed in 2012/2013 , but have had symptoms for 15 years or so. I'm on Fampyra and Lyrica which seem to help. Magnesium and Lecithin very important too. I am in Germany at the moment where the treatment is amazing compared to Ireland where I am from. Anyone else out there with questions on...

@Jem_Carter 

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Jem_Carter

Can you change your neurologist?

Please let me start off by saying I'm not whining or being ungrateful...my current neurologist has been very efficient in organising scans and treatment over the years. But...I am wondering if I can change my neurologist. When I saw him about a year ago he encouraged me to get back with my ex husban...

@LM24 

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LM24

Ocrevus

Started Ocrevus in October last year, my first full dose was due in April but obviously got cancelled due to the Corona virus. It’s been rescheduled for 23rd June (day before my birthday) . I’m just really hoping I’m not told to shield afterwards. Has anyone who has received their treatment lately ...

@schulz_alice 

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schulz_alice

Health is wealth those with MS

Never meet a group of people that are not updated on new discoveries and cures.I posted a message here to help but it was removed because admin claimed i broke house rules..How am i suppose to help other patients in the community when i can not direct them where to get a cure???If you are still with...

@schulz_alice 

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schulz_alice

Multiple Sclerosis cure

My name is SCHULZ ALICE and i am 46 years old . I was born on 19/01/1974 in Carinthia (Klagenfurt)Austria . I grew up there till the age of 20 when i started having Vision problems,Fatigue and weakness,Bladder and bowel dysfunction,Sexual dysfunction,Cognitive problems. Since i was still young i nev...

@Debbie_Titley 

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Debbie_Titley

Newbie

Hi i am new to this site i am 53 and was diagnosed with RR ms when i was 19 only got told about this site recently nice to find people in the same situation and now what its like hope everyone is fine and safe at this unsure time. I am at the moment ok just sat waiting like some of you to start new ...