Hi all, thought I had it sussed this MS after 4 years and permanent symptoms left due to spinal lesson affecting arm and leg sensation. Lockdown has seriously challenged me and deconditioned me, body now reacting. How do you pick yourself up and dust yourself down and stay positive! New treatment ch...
Hi all, hope you are keeping well and safe in these unusual times. I am newly diagnosed in March, first symptoms 18 months ago and 1 minor relapse 6 months ago. Other than that I am lucky not to have any symptoms of note. I discussed with my MS nurse DMT drugs early March and my neurologist recom...
I was diagnosed with relapse remitting MS in around 2010, and have been very fortunate to only experience 1 relapse since this first attack. It may be coincidence, however since the initial diagnosis and subsequent treatment, I have been experiencing back pain which is worse in the morning. The pain...
I was diagnosed with RRMS last week. The neuro gave me some options in regards to treatment; I'm to take a week to educate myself and hopefully come to a decision. Tomorrow will be one week. I'm leaning towards Tecfidera, but I'm absolutely terrified. I'm terrified about all of this, but in regards ...
Hi all I'm new to the group having only been told I have MS last Thursday although haven't been officially diagnosed but the MS consultant is pretty sure. Bit of a whirlwind following the news bit being as positive as I can. I have an appointment with my specialist nurse in a couple weeks where trea...
Hi community,
Does anyone have experience of neutropenia after Lemtrada?
Horrid to have to deal with extra things on top of the MS.
If anyone has I would love to hear if it’s reoccurred/needed treatment or went away naturally.
Thanks,
Sal
I signed a contract for conducting clinical trials of the drug. My relatives did not approve of my decision and each time they scared me with scary stories and the fact that I would be an experimental mouse🤷. In Ukraine, MS treatment is very expensive, and I think that for me this is a chance to ge...