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@nnahdiliec 

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nnahdiliec

Travelling with Tysabri

Hello! I was just wondering if there’s anyone on here that’s started the treatment Tysabri? I’m currently on Copaxone and the neurologist wants me to move over to Tysabri soon. The reason I’m asking is because I’d planned on going travelling next year and am really hoping this new treatment isn’t go...

@Magnum1 

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Magnum1

Tough subject :(

So my wife of 31 years was diagnosed with RRMS in 1995. In that time she has tried many many medications. Nothing has stopped or even slowed her progression into secondary progressive MS. We travelled to Poland 2010 for CCSVI treatment. Still her MS progressed. She has been using a wheelchair now fo...

@Henrietta 

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Henrietta

Mini rant

So I met up with a friend yesterday for the first time since dx and she wanted to know what my MS was like. As it’s mostly silent right now I said that apart from very numb toes and sometimes feeling like I’m walking on gravel it was OK. Her response was to exclaim that she had numb toes too. She th...

@laurenlucyjane 

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laurenlucyjane

Super fun new symptoms!!

Hey guys, So I was diagnosed in January and after recovering mostly from my first noticeable relapse I thought I was doing just fine. In the last month or so I've been having some bowel and bladder problems such as urgency and hesitation etc it's making me scared to leave my house or walk far or go ...

30th Aug Sunday Meeting

This coming Sunday at the Holiday Inn, Kidderminster Road, Bromsgrove B61 9AB is a MS meeting, all welcome, free parking, good coffee and hopefully an interesting meet up. www.wholesorts.com take a read of my blogs as I am sure you will enjoy

@gerbil 

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gerbil

Canal boat holiday

I am due to go on holiday on a canal boat with 8 extended family in mid September. It was booked a year ago but since then my SPMS has got much worse. I know I won't be expected to do much at all but I have started using a wheelchair inside the house after having many falls and I know there isn't ro...

@Adele_Barrow 

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Adele_Barrow

Hols

just got back from a week away , to be honest I've surprised myself with what I have done, dont get me wrong its been bloody hard but for my girls sake it was worth it to see them enjoying themselves, bench break rest do a bit more , rest , luckily my family understand and they have to listen when...

@fuzzyjonclay 

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fuzzyjonclay

Tips on buying a bike

Hi everyone For a while now I've thought about purchasing a bike in order to get in some decent exercise. I'm not great at walking long distances (due to my RRMS), so I was looking for another avenue. However, I'm on holiday at the moment and I thought I'd try out my mother-in-law's bike.... the re...

@BULLMAN 

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BULLMAN

This is getting hard.

I told my suitcases there would be no holiday this year, now I’m dealing with emotional baggage!

@Hlyndar89 

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Hlyndar89

Travel and Covid19

What are people’s views on travel at the moment? I’m due to go to Amsterdam with my friend for a few days in August. Obviously I’ll be vigilant with hand washing and social distancing where possible but I can’t imagine the place will be heaving with folk like it usually is. Am I being too fearless? ...