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Hi all, I've been on pregablin full strength for 4 years, and although it does help sooth the nero pain, help with sleep and my anxiety - it doesn't completely quosh the pain I feel everyday. The gnawing & arthritic pain (I osteoarthritis too!) - which is in back, fingers, hip & knees. ...

In the future, when our kids are the parents... 🤔 ‘Oh my god, these kids are doing my head in. Six weeks is so long.......’ Six weeks? SIX WEEKS?? Try six chuffing months! You parents today haven’t got a clue what we went through in 2020. Six months of entertaining you little shits, and we could...

Hey guys, it’s been a while since I’ve come here and hope you are all doing well. I have been suffering quite a lot of late due to the immobility of my legs and the constant pains below the waist. Does anyone recommend any treatment to take or maybe some advice to treat spasticity and prolonged ag...

Hi everyone! I've found out my MDT are shifting me onto natalizumab, and I want to get people's opinions on how its improved their MS and how you feel about side effects you may get? I know I hate the post injection reactions from copaxone. I've also read that you can take it up to conception, main...

I know I have sensitive ears, for example I don't like watching things too loud. Other people moan it's too quiet for them to hear at the level I watch stuff. I used to get it every now n then when the TV is too loud or people are rasing their voices. It feels like the thin part of your inner ear i...

Hi- with Covid really just passing through my area I have restarted my PT. I left off in December when they shut down. He left me with some good exercise options and I tried some of the other options so readily available on-line. The good news is that I think I have been able to maintain strength p...

I want to share my experiences with everyone about my ketogenic diet. The Keto diet is very low in carbohydrates and high in healthy fats with a medium protein intake, and it is designed to put you into ketosis, which makes your body burn fat for energy, instead of glucose. The benefits can be ama...

Hello all. Here is a post which I hope communicates a positive event in spite of, and separate to, MS. First, to say that I am not at all a vain person, but have always appreciated being relatively trim and spritely due to good genes. For many decades I have maintained a constant weight, give or tak...

Hi I’m Christine This is my first post . Now I have PPMS . This has been a whirlwind of so many ups and downs . I was DX in 2003 with RRMS. Mine really started going down hill 5 years ago. I have been having so much pain in my shoulders and legs. My left foot and ankle swell really bad if I walk to...

Love that ms nurse says oh I respond to emails faster... Last time I got no response at all. This time well I'm 4days in not holding much luck. Guess I'll phone tomorrow and see. Legs been giving out multiple times a day for almost three weeks now. Plenty of bruises have been collected and pulled m...