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Testy McTestface

Hi there, I'm testing the new swanky site on the hottest day ever in the UK. Fans are blowing to no avail. I think i fancy trying out the old hashtagging.. #toohot and @ting ... @maxllar
London, United Kingdom

@whitneya 

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whitneya

Quitting job after diagnosis?

Hi all, I am 22 and was diagnosed with rrms in July after an attack in May. I’ve just started a dmd. Still have some symptoms - fatigue, feeling faint and I overheat quickly. My managers know, but they just don’t get it. My job is so fast-paced and they still think I can do anything and everything...

@Shannon_Devlaminck 

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Shannon_Devlaminck

Just an update of sorts

Hey all, Hope everyone is doing we. I am hanging in there here. a bit run down today. Has been a busy few months and more recently in the last few weeks has gotten insane. Mostly all good things though so there is that at least. Firstly an up date on things with my son. Things are going so am...

@apop 

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apop

Answer to questions...

I want to know where in this site do I get an answer if I have a question. I am new to this site and I am not sure how it works. I see there is some dialog between members but I don't see where I can get the answer to my question in my previous post.

@Tanya_Trenholm 

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Tanya_Trenholm

Ocrevus: delaying v shielding

This is a long post, so I apologise in advance. I was due to have my first full dose of ocrevus at the end of March. Having made contact with my MS team in the weeks leading up to this to check that I should still go ahead in the current climate (Coronavirus), I repeatedly got the answer back that m...

@melissa.g 

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melissa.g

Mixed emotions at MRI results

Hi everyone. Haven't posted much lately but I felt inclined to share today. So, I hadn't had a brain MRI in 2.5 years, and they finally set me for one last month. I don't see the dr until February so I asked my chiropractor (who also does neuro rehab etc) to get the results for me. We went over th...

Would I be changing meds?

Hi all. So, I know, a couple of weeks ago, I had an MDT DMT meeting, discussing my medication and recent relapses and new lesions. Still not received a letter from them, but I know that it can take a couple of weeks. However, a nurse from my MS team called me today, telling me that they'll be booki...

@Aimee 

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Aimee

Hobbies & Interests

I’d love to hear about everyone’s hobbies and interests- whether it’s something you were into pre-diagnosis that you’ve adapted to work around your MS symptoms, or if it’s something completely new to you that you wouldn’t have discovered without your MS. You never know when someone might need an u...