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Hi! I’m Jenny-May,I’m 21 and I’ve recently been diagnosed with relapsing remitting MS. I’ve been advised to join because I’m quite ‘lonely’ as my therapist says 🤦🏼

I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...

Hi everyone, I'm wondering whether anyone on here has had any virtual consultations with their Neurologists or MS Nurses? Either over the phone or even more excitingly over a video call of some sort? I've not had one myself, but I wanted to know what experiences people may have had, positive and or...

Hi everyone, even though I’ve had MS for over ten years I’m pretty new to the forum scene. I haven’t really spoke or sort advise on anything like this? I’m thinking of purchasing an electric wheelchair as my mobility over the last couple of years as become worse. Can anyone make any recommendations,...

Hi I’m looking for some advice if poss.... I have been on copaxone for 10 years and the sight reactions are much worse which has made me seek alternative DMTs. I’ve chosen Tecfidera and got the green light so just waiting on starting. My issue is I work in public facing role for civil service and h...

Anyone else get highly f*cked off when people spread misinformation about the genetic link in MS? Plus the idea that a parent with MS would be less than and is selfish for wanting to have children!? I have enjoyed my life, I am still enjoying my life at 29, 2 years post diagnosis. Had my parents ha...

Hi everyone, This is a bit of a vent, cry, shout and things along those lines. I just discovered today that I’m due an ESA assessment next year. Why, when I’ve got a progressive disease? Answers not necessarily required. In 2013 I was due a second assessment, first was 2011. I went through the r...

I am a scientist based in the UK. I'm doing some research in the area for SMART technologies ie technology that improves the patients experience when they need to take medications. Specifically, I am interested in two technologies that have been introduced for MS patients. The first is for patie...

Something I have really struggled with is my fitness whilst living with MS. I have created a group On FaceBook so I can share hints/ tips and videos. It would be great if you share/ join 👍 https://www.facebook.com/groups/279985380089987/?ref=share

Hello everyone 😀 Just a random question but I’ve noticed that after long walks I’ve started to get sore hips don’t know if it’s MS or just because lock down happened and I’ve not really done a lot of walking. But after long walks my hips kill the next day affecting my my day to day life. Anyone els...