Looking for
something specific?

Anyone else get highly f*cked off when people spread misinformation about the genetic link in MS? Plus the idea that a parent with MS would be less than and is selfish for wanting to have children!? I have enjoyed my life, I am still enjoying my life at 29, 2 years post diagnosis. Had my parents ha...

Hi everyone, This is a bit of a vent, cry, shout and things along those lines. I just discovered today that I’m due an ESA assessment next year. Why, when I’ve got a progressive disease? Answers not necessarily required. In 2013 I was due a second assessment, first was 2011. I went through the r...

I am a scientist based in the UK. I'm doing some research in the area for SMART technologies ie technology that improves the patients experience when they need to take medications. Specifically, I am interested in two technologies that have been introduced for MS patients. The first is for patie...

Something I have really struggled with is my fitness whilst living with MS. I have created a group On FaceBook so I can share hints/ tips and videos. It would be great if you share/ join 👍 https://www.facebook.com/groups/279985380089987/?ref=share

Hello everyone 😀 Just a random question but I’ve noticed that after long walks I’ve started to get sore hips don’t know if it’s MS or just because lock down happened and I’ve not really done a lot of walking. But after long walks my hips kill the next day affecting my my day to day life. Anyone els...

I apologize in advance for the long post. I know MS is different from Person to person, My ms consists of numbness in my right hand and neurological pain in my abdomen and fatigue and I experience these symptoms on the daily. When I 1st knew something was wrong was my 1st clinical event that happe...

Thanks to everyone who came to the live PPE for the Mind session this morning with Gemma and Jo - if you were there, say hi below 👋 - If you’ve missed any episodes and have no idea what PPE for the Mind is, we’ve been releasing a video a week about how to build your mental six pack and build a resi...

Hi all, I’m looking for some inspiration - I think I need to change career to something that’s more suited to a slower pace of life and a bit less demanding (I’m a digital product manager - which is kind of like a project manager, quite fast paced and demanding). Has anyone retrained to do somethin...

Hi all, thought I had it sussed this MS after 4 years and permanent symptoms left due to spinal lesson affecting arm and leg sensation. Lockdown has seriously challenged me and deconditioned me, body now reacting. How do you pick yourself up and dust yourself down and stay positive! New treatment ch...

Hi....my name is Lisa. I'm 50. Until the diagnosis with this life changing disease I was a gym goer....almost every day .... Ran from work....I never really sat down. I have progressive ms. Last year I had a stem cell transplant in the hope my disease would be halted.....it hasn't worked. Its still ...