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@Shannon_Nichol 

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Shannon_Nichol

MSI

I have RRMS/SECONDARY and at times, I, feel like I can't even walk, it hurts so bad to walk sometimes. I don't want to use a wheelchair because my independence is so important to me. Maybe, I am having a bad exacerbation, but if that is what it is, this would be one of the worst one's that I had. A...

@Shannon_OHara 

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Shannon_OHara

Next drug is cladribine /mavenclad

Hey guys, I've been diagnosed with Ms since I was 13 and had lots of scarring before then, had nearly 10 years of treatment. However, my Ms keeps becoming active. The next and only drug they are suggesting is cladribine /mavenclad. So taking it for the short amount of time over two years. I'd lik...

@Clary 

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Clary

Hi

Hi all, I am new to this site. I am currently in limbo. I do not have a diagnosis, although the neurologist felt it probably is MS. Limbo is difficult because I do not fit in with any group. One minute I am up, and then I am down. This is uncertainty. I guess a lot of people out there have experienc...

Sponsored walk

I am Patrick and I am badly disabled by Multiple Sclerosis to the extent that my balance is atrocious and must use a walking frame. I threw my walking sticks away a few years ago, they were no good. Instead I use a walking frame because it’s better at keeping me upright with my feet on the ground. ...

@DRUMmondBASS 

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DRUMmondBASS

Potential redundancy

Hope everyone is doing well! Tough time but we've made it this far. I have been furloghed sinced the end of March, my job isn't technically allowed to be open until the 1st of October. It would seem there's a high chance they won't open until next year. This would mean I will have to find a new j...

@MiaPi 

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MiaPi

Copaxone switch to Tecfidera

Hello all, So I have been on Copaxone for 3 years. 1st year all good no relapse or new MRI lesions. Second year I got one new lesion but since it was also small my dr said let’s stay on Copaxone. Now my latest MRI showed one new lesion but at the same time I got lipoatrophy on my thigh from the Cop...

@Henrietta 

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Henrietta

Mini rant

So I met up with a friend yesterday for the first time since dx and she wanted to know what my MS was like. As it’s mostly silent right now I said that apart from very numb toes and sometimes feeling like I’m walking on gravel it was OK. Her response was to exclaim that she had numb toes too. She th...

@Rachel_Fenn 

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Rachel_Fenn

Just Diagnosed.... Help!

Good afternoon everyone. My name is Rachel, a 33 year old mum to a very energetic 7 year old boy. I have very recently been diagnosed with MS and after having my first call with my hospitals MS specialist today they put me in touch with this very special and unique site. I am very new to this an...

@Stankg 

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Stankg

Rose

Hi there, I would like to ask, have anyone ever had eye twitching and sound in ear like water(not blocked just sound) and do you think it’s related with the MS? It lasts nearly a week and I’ve started to be really worried now as I’m thinking even if something else like stroke or I don’t know but ju...