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Sponsored walk

I am Patrick and I am badly disabled by Multiple Sclerosis to the extent that my balance is atrocious and must use a walking frame. I threw my walking sticks away a few years ago, they were no good. Instead I use a walking frame because it’s better at keeping me upright with my feet on the ground. ...

@DRUMmondBASS 

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DRUMmondBASS

Potential redundancy

Hope everyone is doing well! Tough time but we've made it this far. I have been furloghed sinced the end of March, my job isn't technically allowed to be open until the 1st of October. It would seem there's a high chance they won't open until next year. This would mean I will have to find a new j...

@MiaPi 

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MiaPi

Copaxone switch to Tecfidera

Hello all, So I have been on Copaxone for 3 years. 1st year all good no relapse or new MRI lesions. Second year I got one new lesion but since it was also small my dr said let’s stay on Copaxone. Now my latest MRI showed one new lesion but at the same time I got lipoatrophy on my thigh from the Cop...

@Henrietta 

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Henrietta

Mini rant

So I met up with a friend yesterday for the first time since dx and she wanted to know what my MS was like. As it’s mostly silent right now I said that apart from very numb toes and sometimes feeling like I’m walking on gravel it was OK. Her response was to exclaim that she had numb toes too. She th...

@Rachel_Fenn 

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Rachel_Fenn

Just Diagnosed.... Help!

Good afternoon everyone. My name is Rachel, a 33 year old mum to a very energetic 7 year old boy. I have very recently been diagnosed with MS and after having my first call with my hospitals MS specialist today they put me in touch with this very special and unique site. I am very new to this an...

@Stankg 

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Stankg

Rose

Hi there, I would like to ask, have anyone ever had eye twitching and sound in ear like water(not blocked just sound) and do you think it’s related with the MS? It lasts nearly a week and I’ve started to be really worried now as I’m thinking even if something else like stroke or I don’t know but ju...

@GiuliaB 

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GiuliaB

Is Brighton hospital any good?

Hello there, I've moved from London to Brighton in November, and at the time I decided to keep my neurologist in London, but now going back and fourth for MRIs etc isn't ideal. Does anyone have any experience of ms doctors/nurses in Brighton? Any recommendation? Cheers, g

@KCshea 

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KCshea

MS itch

Hi everyone Can anyone recommend anything for the horrible itchy, crawly sensation. I have been dogged with them for days & they also stop me from sleeping. Would be grateful for any advise? Thanks

@Carole-Ann_Scott 

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Carole-Ann_Scott

First treatment due

Hi all I am due to start treatment for the first time & have been offered either Brabio or Abonex as first line. Any experiences of either? Side effects etc? I’ve read up a lot & spoken with my ms nurses & im leaning towards Avonex Many thanks x

@lukezni 

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lukezni

Stormy weather

Seems like a bit of a weird question but does stormy weather effect your ms? There is currently a storm hitting here (the first since I've been diagnosed with ms) and my head feels like what could only be described as stuffy/heavy? My ears have a constant feel to them as if they are about to pop