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I am a scientist based in the UK. I'm doing some research in the area for SMART technologies ie technology that improves the patients experience when they need to take medications. Specifically, I am interested in two technologies that have been introduced for MS patients. The first is for patie...

Something I have really struggled with is my fitness whilst living with MS. I have created a group On FaceBook so I can share hints/ tips and videos. It would be great if you share/ join 👍 https://www.facebook.com/groups/279985380089987/?ref=share

Hello everyone 😀 Just a random question but I’ve noticed that after long walks I’ve started to get sore hips don’t know if it’s MS or just because lock down happened and I’ve not really done a lot of walking. But after long walks my hips kill the next day affecting my my day to day life. Anyone els...

I apologize in advance for the long post. I know MS is different from Person to person, My ms consists of numbness in my right hand and neurological pain in my abdomen and fatigue and I experience these symptoms on the daily. When I 1st knew something was wrong was my 1st clinical event that happe...

I’ve changed my profile picture! I just wanted you all to know that: Yes I can’t walk very well Yes I have a numb right hand Yes I have pain in my legs Yes I have balance issues ... so I flew to Geneva... and sat on a train for hours that took me to the top of a mountain! It was a challenge but blo...

Thanks to everyone who came to the live PPE for the Mind session this morning with Gemma and Jo - if you were there, say hi below 👋 - If you’ve missed any episodes and have no idea what PPE for the Mind is, we’ve been releasing a video a week about how to build your mental six pack and build a resi...

I have been using fingolimod almost 18 months and recently l have been constantly ill, flue, coughing and others and in the last couple of months a scaly, itchy lesion or patch appeared on the outside of my right arm which does not seem to be healing and fits with the descriptions of skin cancer tha...

Hey guys, I’m due to have my second infusion of ocrevus next month (so my first one was 6 months ago) and I’m feeling increasingly rubbish! Was on tecfidera previously and felt my usual healthy self but my MRIs showed progression so I was switched to ocrevus. I continued to feel healthy until the ...

Hi everyone, I'm currently planning on moving to Dublin, Ireland within the next 6 months and I'm starting to think about changing neurologists. I will obviously have to get a referral from my GP to see a neuro. I've been told that it can take up to 6 months to get an appointment!! Does anyone ha...

More of the type of research we can all support ;-) https://multiplesclerosisnewstoday.com/news-posts/2020/06/30/boosting-mitochondria-cellular-energy-at-myelin-loss-sites-may-stop-ms-progression/