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I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...

Hi everyone, I'm wondering whether anyone on here has had any virtual consultations with their Neurologists or MS Nurses? Either over the phone or even more excitingly over a video call of some sort? I've not had one myself, but I wanted to know what experiences people may have had, positive and or...

Hello I've been recently diagnosed, I'm still getting my head round it, fed up with the chronic pain, I'm working mum with two kids. My MS Nurse is coming to see me next week. I feel like people that don't have MS don't really get it. If I say I'm tired they say oh I am too, erm it's not the same!!...

Hi I’m looking for some advice if poss.... I have been on copaxone for 10 years and the sight reactions are much worse which has made me seek alternative DMTs. I’ve chosen Tecfidera and got the green light so just waiting on starting. My issue is I work in public facing role for civil service and h...

Anyone else get highly f*cked off when people spread misinformation about the genetic link in MS? Plus the idea that a parent with MS would be less than and is selfish for wanting to have children!? I have enjoyed my life, I am still enjoying my life at 29, 2 years post diagnosis. Had my parents ha...

Hi all, thought I had it sussed this MS after 4 years and permanent symptoms left due to spinal lesson affecting arm and leg sensation. Lockdown has seriously challenged me and deconditioned me, body now reacting. How do you pick yourself up and dust yourself down and stay positive! New treatment ch...

Hi everyone, This is a bit of a vent, cry, shout and things along those lines. I just discovered today that I’m due an ESA assessment next year. Why, when I’ve got a progressive disease? Answers not necessarily required. In 2013 I was due a second assessment, first was 2011. I went through the r...

So I was diagnosed with MS in 2018 by a general neurologist after all the tests and on and off symptoms for years, I have 5 lesions on brain 1 on the spine, since then been with a MS specialist who did not want to put me on disease modifying drugs as he wanted to watch me further he believes it's M...

Hi....my name is Lisa. I'm 50. Until the diagnosis with this life changing disease I was a gym goer....almost every day .... Ran from work....I never really sat down. I have progressive ms. Last year I had a stem cell transplant in the hope my disease would be halted.....it hasn't worked. Its still ...

Hi all, I’m looking for some inspiration - I think I need to change career to something that’s more suited to a slower pace of life and a bit less demanding (I’m a digital product manager - which is kind of like a project manager, quite fast paced and demanding). Has anyone retrained to do somethin...