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@Aaron_Holden 

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Aaron_Holden

Recent diagnosis

Hello everyone. I just wanted to say hello and maybe get any useful info from anyone who may have had similar experiences. Firstly I want to point out that I am not suffering badly and am well aware that I am more fortunate than many so really don't want any sympathy, just thought my story might be ...

@Shannon_Simons 

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Shannon_Simons

Multiple auto immune disorders

Hi everyone I just joined I was wondering if any of you have multiple auto immune disorders? I found out I was diabetic (type 1) when I was 20 and recently at 36 diagnosed with MS last year. Now knowing that a lot of what I was experiencing for years had to do with the MS it explains a lot. I actual...

Newbie

Hi I'm new to this group, I was diagnosed June 2020. My first symptoms started 2hrs ago as Carmel tunnel syndrone. My right arm would go numb for a few minutes and I would shake it off. January 2020 I went to ER with symptoms of right sides numbness and when I bend my forward I feel an electric ting...

@angieH 

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angieH

New lesion

Just received result of annual MRI of brain and CSP. Quick recap is diagnosed w MS 1998. No DMT or identifiable symptoms until 2017, been on copaxone for 3 years. Most recent MRI says new lesion r fr lobe, and a Highlighting peri ventricular lesion which is also new. I’m feeling a bit alarmed! I ...

@beky 

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beky

Advice/slight rant!

Hi all, hope everyone is doing ok Slightly confusing situation here: i got diagnosed with RRMS in 2018. I had a brain and neck/spine MRI and my brain looked normal but i had 3 lesions on my C spine which accounted for my symptoms. Fast forward to a few a weeks ago and my neuro sent me for another MR...

@Dalex 

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Dalex

please HELP!

Hi my name is Dominique. I went into the hospital last week because I had some type of stiffness, weakness on my left side. I instantly thought it was side effects to my medication, but long behold, after a MRI, they found lesions in my brain and spinal cord. Being diagnosed with RRMS and being a ...

@Alex_Bolland 

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Alex_Bolland

Never given a chance.

I have primary progressive MS, and have been trying for a long time to get access to ocreveus, they tell me you have to have recent activity in your brain or you will not get it, i feel my condition has worsened and surely this treatment is worth trying whether you have any brain activity or not, i ...

@Tara_Scully 

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Tara_Scully

Need some advice

Hi All, I was diagnosed November 2019 with RRMS. I was put on Rebif which the only complaint i have is the red marks it leaves but would have happily gone on with it. Yesterday i met with a new neurologist after my previous one had left. I had an MRI in advance and there was one small new very sma...

@joycewhite 

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joycewhite

Tethered cord

I just had a mri and they said I have a tethered cord,can anyone explain what this is? I have an app tomorrow morning with a neurologist and I'm a nervous wreck!

@Henrietta 

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Henrietta

Diagnosis - the long and winding road

2001 Optic neuritis. Go blind suddenly - and fortunately temporarily - in one eye. Ophthalmologist sends me to neurologist. The neurologist tells me in a jovial tone to say that I have had optic neuropathy to insurers - if I say optic neuritis they’d put me down as having MS. MRI done. No follow up...