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PPMS

I am new to this site and wondered how many people with PPMS used it? Really interested to hear other people's experience of PPMS. I was diagnosed three year ago after investigations into what was then a mild gait/drop foot problem. Over the past 18 months I have experienced significantly greater...

@Sarah_Williams 

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Sarah_Williams

The neverending story

Hi everyone :) I am getting close to an appointment with a general specialist physician to get the ball rolling for testing to get to the bottom of a big range of symptoms. Some I have been experiencing for a number of years, others have shown their face over the last few months. Due to Covid-19 it...

@Tara_Scully 

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Tara_Scully

Need some advice

Hi All, I was diagnosed November 2019 with RRMS. I was put on Rebif which the only complaint i have is the red marks it leaves but would have happily gone on with it. Yesterday i met with a new neurologist after my previous one had left. I had an MRI in advance and there was one small new very sma...

@zackHussain 

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zackHussain

Hello 😀

Hello All I was diagnosed with MS back in 2003 I’ve had my ups and down I’ve never been on any forums like this before so all new to me after pushing my doctor I’ve managed to have another MRI after 17 years to see how my MS has progressed and awaiting results next week @ 39 now I am worried to be h...

@Fred_R_Coombes 

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Fred_R_Coombes

Nearly new newby at 57

Diagnosed in December 19, after private MRI, as a result of my acupuncture Dr recommending it. Went into hospital with suspected tumour on the spine. Another MRI and CT and just before I left, the Consultant told me that I had MS. I left hospital in a daze, thinking of wheelchairs, dribbling and bl...

@Shannon_Simons 

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Shannon_Simons

Multiple auto immune disorders

Hi everyone I just joined I was wondering if any of you have multiple auto immune disorders? I found out I was diabetic (type 1) when I was 20 and recently at 36 diagnosed with MS last year. Now knowing that a lot of what I was experiencing for years had to do with the MS it explains a lot. I actual...

@MattW 

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MattW

Sildenafil thoughts please

Hello all, I'd like some thoughts from you knowledgable folk plz. I was diagnosed rrms in September 2017 and have been on tec since March 2019. I have remained stable, however my most recent MRI last month (delayed from March) has shown 4 new areas of inflammation. I have not had a noticable relap...

@MiaPi 

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MiaPi

Copaxone switch to Tecfidera

Hello all, So I have been on Copaxone for 3 years. 1st year all good no relapse or new MRI lesions. Second year I got one new lesion but since it was also small my dr said let’s stay on Copaxone. Now my latest MRI showed one new lesion but at the same time I got lipoatrophy on my thigh from the Cop...

@angieH 

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angieH

Should I know if it’s a relapse?

I have been feeling so crappy. I am diagnosed with RRMS since 1998 at age of 28. No real problems until 2017! When I had a flare up main symptom dizzy and fatigue - severe. I recovered nearly complete, went on my first dmt copaxone. Annual mris were fine, a couple of small lesions even disappeare...

@GiuliaB 

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GiuliaB

Is Brighton hospital any good?

Hello there, I've moved from London to Brighton in November, and at the time I decided to keep my neurologist in London, but now going back and fourth for MRIs etc isn't ideal. Does anyone have any experience of ms doctors/nurses in Brighton? Any recommendation? Cheers, g