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@pinkcandystick 

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pinkcandystick

Swatting MS with a stick!

Hi friends. It's been a while since I posted so I'll give you a quick run down. I went off all ms meds in sept of last year due to having a 1 in 100 chance of contracting PML. Then in december I had a flair up that had me in bed until march. It was horrific to say the least. So in march I started my...

@SBGill91 

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SBGill91

Tyasbri

Just back from infusion #5 of tysabri and doesn’t seem to be making any difference at all...... Still original symptoms and new symptoms Anyone In same boat...? Also whilst I’m on, anyone got recommendations on CPD vapes?

@nicole_kelly 

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nicole_kelly

Symptoms

I felt really good today, i didn't do much just played some video games but by 6pm i was exhausted. i lay down for a nap but i woke up exhausted, dizzy and it felt like my heart beat was in my head i could hear and feel it. it this common and caused by MS?

@jennymay1548 

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jennymay1548

Introduction

Hi! I’m Jenny-May,I’m 21 and I’ve recently been diagnosed with relapsing remitting MS. I’ve been advised to join because I’m quite ‘lonely’ as my therapist says 🤦🏼

@Constance56 

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Constance56

Hello all!

I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...

@Constance56 

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Constance56

Just Joined

Hi. I'm Constance. I was diagnosed with PPMS in 2010 but had symptoms 5 years prior. I retired in 2013 due to too many symptoms. I'm about to turn 64 and walk with a cane. I take High dosage biotin, use the Fasting Mimicking diet almost every day. I'm gluten free and try to stretch/ exercise daily.

@kittyks 

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kittyks

TreAtment

Hi guy I was wondering if you have treatment for Ocreus do you have to shield or can return back to work... Please let me know Thank you

@aimeemcw0505 

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aimeemcw0505

Dreaded bladder issues

I’ve had bladder issues for the past 5 years and had just started to get things under control with Intermittent catheterisation, medication for overactive bladder and accupuncture. Over the last couple of months things seem to be getting worse again. The anxiety I feel over this is so overwhelming a...

ITP and Neutropenia

I developed ITP (low platelets) and low white count 3 years after Round 2 of Lemtrada. It has been 7 months now and I am taking Promacta for my low platelet counts. My neutrophils are staying low and currently are 0.1. Has anyone else developed ITP or low white counts that lasted this long?

@mojo 

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mojo

Tecfidera and COVID

Hi I’m looking for some advice if poss.... I have been on copaxone for 10 years and the sight reactions are much worse which has made me seek alternative DMTs. I’ve chosen Tecfidera and got the green light so just waiting on starting. My issue is I work in public facing role for civil service and h...