Looking for
something specific?

So I’m waiting for a diagnosis of various symptoms. I had an appointment via video link at home with a neurologist and I just feel like I messed it up. I’ve been waiting for 6 months , in pain , and I couldn’t articulate my symptoms . He asked me if it’s there all the time or now and again - I an...

Does anyone know if they have started ocrevus infusions at kings London again yet? I was due to start infusions in March but it was obviously cancelled. Told I was near the top of the list but haven’t heard anything. I have been waiting since September. 2019

Hey all, Hope everyone is well. Been not doing to bad here the last little while. Excluding today. But the last I don’t know 5 weeks or so now been feeling pretty good. Been getting stuff done outside that hasn’t been able to get done in the last 3 years. So was a lot of work. Also had to move ...

Hello Just thought I would say hi and try to reach out to anyone who are successfully managing their MS and are fortunate to be their own boss. I feel that I need to start to work for myself as whenever I have been in employment I seem to get unlucky and hit problems. Mainly down to having MS and...

recently got diagnosed with RRMS. its hard to digest. i m really keen to make every effort for healthy life. i was wandering if anyone has benefitted from OMS recovery ?

Hi! I am hoping to get some feedback. I am dx RRMS. Doing pretty well, on Glatopa (copaxone) about three years. Anyway, I am having serious joint pain in both hands and mainly thumbs. Maybe carpal tunnel but I have much joint pain in other areas like knees and feet. But the hands are the worst. An...

Hi I’m so sorry if this is inappropriate but I’m just upset and don’t have anyone I feel will understand to talk to. I have just come off a telephone consultation with my (very nice) GP. I had an MRI as I have been having symptoms that my GP agreed sound like MS for ages - even years. I’m 36yrs old....

Need to get something off my chest....... so fed up, diagnosed 24th March 2020. Still no communication, phone calls or anything else from any health care professional. I keep reading about asking your ms nurse for advice - think I’m losing it cos I’m still waiting.

Hi everyone! I'm just coming back to check in as I realise I've not been around for a while. I had NEDA (No Evidence of Disease Activity) on my last MRI and have been feeling fine since then *touch wood* I became friends with an amazing woman who also has MS and hosts a podcast about living with a...

Hi everyone. Apologies that my question is not MS related but as Psoriasis is also an autoimmune condition I'm hoping someone will have some advice. For the least 5 years, my friend has been struggling to get treatment or even get an appointment at the local NHS Trust because her "condition is not ...