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@Sarah12 

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Sarah12

Weak legs

Hi I am Sarah. Diagnosed with ms in 2012. Over the past few weeks I seem to have got really weak legs that has starting going heavy and giving way after about 5 minutes of walking. I was wondering if anyone had any advice on the best way to tackle this as I want to be able to live my normal life....

@EllieSmith 

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EllieSmith

Falling, my body just drops no warning?

Love that ms nurse says oh I respond to emails faster... Last time I got no response at all. This time well I'm 4days in not holding much luck. Guess I'll phone tomorrow and see. Legs been giving out multiple times a day for almost three weeks now. Plenty of bruises have been collected and pulled m...

@whitneya 

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whitneya

Quitting job after diagnosis?

Hi all, I am 22 and was diagnosed with rrms in July after an attack in May. I’ve just started a dmd. Still have some symptoms - fatigue, feeling faint and I overheat quickly. My managers know, but they just don’t get it. My job is so fast-paced and they still think I can do anything and everything...

@Mary_Wolford 

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Mary_Wolford

MS IS TERRIBLE

Ik on more than 1 med for MS my legs and arms get very heavy. I have a baclofen pump inside of me don't think it helps much. Heat and cold sensitive. Hard time walking gaining weight do to gabapentin and lack of ability to exercise. Sound familiar? Any suggestions?? Any would be appreciated

@EmilyMac 

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EmilyMac

Treatment advice

Hello! I’ve been told today how amazingly positive this site is and I can already see from just having a little nose it’s just what I need! I was diagnosed 3 weeks ago, shock probably was an understatement. I haven’t googled anything really, just had conversations with the Neurologist and my nurse. ...

@Tanya_Trenholm 

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Tanya_Trenholm

Ocrevus: delaying v shielding

This is a long post, so I apologise in advance. I was due to have my first full dose of ocrevus at the end of March. Having made contact with my MS team in the weeks leading up to this to check that I should still go ahead in the current climate (Coronavirus), I repeatedly got the answer back that m...

@melissa.g 

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melissa.g

Mixed emotions at MRI results

Hi everyone. Haven't posted much lately but I felt inclined to share today. So, I hadn't had a brain MRI in 2.5 years, and they finally set me for one last month. I don't see the dr until February so I asked my chiropractor (who also does neuro rehab etc) to get the results for me. We went over th...

@Tania_Pilz 

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Tania_Pilz

Get out of my way sun!

Is anyone as irritated by the sun and heat as me? I can't go 5 mins without feeling hot and sweaty, direct sunlight and heat make me grumpy. I tried escaping this crazy weather in the mall, and now I'm exhausted from all the walking. 😛 Not sure if this is MS-related, but I need a break from the sum...

Baclofen and pregnancy

Hello! Has anyone taken baclofen throughout their pregnancy? I came off it in order to have a baby but now I’m pregnant I am suffering so bad with leg spasms :( I can’t relax or sleep and I’m at my Whitt’s end but I am scared to take it as the study numbers are so low. I don’t think I can go on like...