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Page 14

@KatieLondon 

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KatieLondon

Horrible month

Hi all have had a rough month, came off of Gilenya, started Tysabri, then had a terrible relapse couldn’t walk stand or barely move. I’ve has 10 days of intense steroids my walking drop foot are starting to get more manageable and life is finally starting to get back to normal. Hope everyone else i...

@Andre_Cyr 

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Andre_Cyr

Wheelchair access

The government paid $6,000 on repairs and I'm still not getting it used and I was prescribed an electric wheelchair with the automatic legs and backing all three different prescriptions I was diagnosed with secondary Progressive. Don't understand Ontario Health Care coverage ODSP?

@pauley 

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pauley

Thankful

Hi there, I just finished my 1st cycle of Mavenclad treatment...free now for 4 weeks before the next lot No real side affects...just a little exhausted...more than the usual kind I could feel burning sensation while swallowing the medication..make sure anyone taking this medication has plenty of w...

@A_Girls_Gotta_Eat 

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A_Girls_Gotta_Eat

Diet and MS

Hey guys I’m in need of urgent help! I’ve had extreme bloating and abdominal discomfort for as long as I can remember ! The doctors have ran all the tests and don’t know what’s wrong :( I was wondering if anyone follows a certain diet that might help with this because I have a feeling it’s connected...

@lukezni 

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lukezni

Your latest ocrevus infusion

Has anyone recently had an infusion of ocrevus? Were you told to shield after? I'm due another round next Wednesday and I've been seeing mixed information on having to shield again 🥴

@jennymay1548 

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jennymay1548

Introduction

Hi! I’m Jenny-May,I’m 21 and I’ve recently been diagnosed with relapsing remitting MS. I’ve been advised to join because I’m quite ‘lonely’ as my therapist says 🤦🏼

@hope33 

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hope33

Petition Request-Covid19 and employment

From MS Society With shielding set to be paused in all four nations of the UK in August, we want the UK Government to support people with MS who can’t safely go back to work. We’re campaigning with Age UK, the Trade Union Congress (TUC) and 9 other charities. Together, we’re calling for the furlou...

@Adele_Barrow 

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Adele_Barrow

hi

hi guys I've been diagnosed for many years thinking they were wrong , but over the last 2 years o.m.g I should of listened ive gone from rrms to spms since I lost my dad and anti social behaviour from my neighbours ive had to give in and think shit they was right ive 4 kids 3 under the age of 7 and ...

Cognitive deficits advice

I’ve realised since my diagnosis my cognitive ability has decreased drastically! Does anyone have any techniques or exercises they do that help ?

@Lisamarie@6 

Last reply

Lisamarie@6

Tysabri infusion

Hi , I had my first Tysabri infusion on Wednesday . I felt fine after it & just felt a bit tired. I’m feeling a little off balance when I’m walking since yesterday. Just wondering if anyone experienced anything similar after infusion . Thanks