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@poleyjo 

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poleyjo

First Neurology appointment

So after more than 6 months of real struggle with suspected MS symptoms I finally have my first appointment with a neurologist on Sunday. Can anyone please give me insight on what to expect? I have been tracking my symptoms and will condense this list and take it along with me. Is there anything els...

@SJ1990 

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SJ1990

Coming off gilenya?...

Has anyone come off gilenya?? I've been on it for 4 years and they want to take me off it now and switch me back to tysabri due to reactions from it. I really want to have a break from medications and see if I can treat it naturally but have been told that symptoms/relapses can come back with a veng...

@VanBax 

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VanBax

Amantadine

Hi all. Does anyone have any experiences of taking Amantadine for MS fatigue. I am currently taking modafinil x 2 100g first thing each day but still suffer from chronic fatigue in the afternoons. MS Nurse has recommended switching to Amantadine. I’m happy to switch but reluctant to give up moda...

@summy 

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summy

Dr Coimbra's vitamin d protocol

Hi I have recently been diagnosed with Ms and am reluctant to take medication and therefore have been looking into alternative treatments. I feel hopeful about Dr Coimbra's vitamin d protocol which has been backed up by many other doctors such as Dr Berg. I have started taking high doses of vitam...

@Jeslyn_Mauriello 

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Jeslyn_Mauriello

Tecfidera and child-bearing?

There’s quite a bit of literature online for this, and I will be talking to me doctor of course. But as I am on Tecfidera, I was hoping one of you on my team would have a word for me in regard to taking the medication while A) trying to conceive B) while breastfeeding. I know you don’t take the me...

@DrLisa 

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DrLisa

Hair loss

Anyone dealing with hair loss? I don’t know if it’s because of MS or a medication, but about half my hair is gone.

@melissa.g 

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melissa.g

Mavenclad

<p style="margin: 0cm; margin-bottom: .0001pt; line-height: 16.8pt; vertical-align: baseline;"><span style="font-size: 13.5pt; font-family: 'Times New Roman',serif; color: #333333;">Hi all!</span></p> <p style="margin: 0cm; margin-bottom: .0001pt; line-height: 16.8pt; vertical-align: baseline;"></p>

@basgds 

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basgds

Thanks for accepting my request to join.

I just feel right now like the closer I am to an answer, the further away I am. I have been sick for 5 years and have had multiple diagnoses - Vitamin B12 deficient, COPD, Asthma, Vertigo, Adrenal Stress, Arthritis, Depression, just general aging. The thing is no matter what meds I took, it seems ...