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@ncm22 

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ncm22

How long have you had ms ??

Hi everyone. I have had relapsing remitting ms since 2010, symptoms since 2007. Main symptom numbness from waist down on movement. I have had numbness for 10 plus years. I also get tremors from waist down, usually controlled by medication. I get other sensory issues. I didn't start medication till...

@TheNewGuy 

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TheNewGuy

Copaxone CSYNC Autoinjector

Hey there everyone, so I have recently been diagnosed and put on copaxone, with the medication arriving tomorrow. I also have the CSYNC autoinjector in my drawer, ready to go. If anyone is using, or has used it, I have a few questions. I did not get an appointment with the nurse to show me how to ...

@Cassie_Farrugia 

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Cassie_Farrugia

Feeling lost

Hi everyone, I hope you’re all well! I’m feeling a little lost at the moment. I gave birth to my beautiful baby boy 9 weeks ago - unfortunately my epidural was placed in the wrong spot and wasn’t picked up until I went completely numb from the waist down and needed to be moved with a sliding she...

New treatment Ocrelizumab or Mavenclad

My neurologist has suggested Ocrelizumab or Mavenclad. He saidBoth are equally effective. Ocrelizumab is 6monthly infusion, while Mavenclad is oral medication-a 2year-course treatment, with 20day-doses over 2year period. Confused? Can I ask members for their experience with either treatments 🤔

@Adelleholly 

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Adelleholly

Medication types

Hi, similar to my post yesterday. I’m trying to figure out the best medication and was just curious if any of you have tried Copaxone? If you have did it prove to work or not at all??

@Adelleholly 

Last reply

Adelleholly

Medication.

I’ve recently just been diagnosed and have been given the option of which medication I could try out the most promising one is Tecfidera but has some unpleasant side effects and I was just wondering if you are on this medication, how long did the symptoms last or do you still have them?

@Murray 

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Murray

Disclosing MS diagnosis

<p>I have been reading the posts about working as a nurse with MS, and have a quandary – I am a therapist, with RRMS, due to start Ocrevus post-lockdown.</p> <p>The MS does not interfere with my ability to work. A colleague (the only one who knows about the MS) is anxious as to whether my employers ...</p>

@ColettePage 

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ColettePage

Child minding granddaughter

<p>My 14 month old granddaughter lives with us (along with her parents) plus my other sons. 2 are mental health key workers, my daughter in law is a nursery nurse key worker (currently furloughed) and my youngest at uni is earning money working part time as a key worker in Farmfoods frozen food shop...</p>

@Browneyedlady 

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Browneyedlady

I need answers

<p>I was diagnosed with MS in 2009. </p> <p>My complaint is my neurologist. She says I have no need for medication at this time and never calls or has me schedule an appointment. She doesn’t listen to my symptoms. I asked many questions and she didn’t answer any.</p> <p>What can I do?...</p>

@potter 

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potter

Bladder problems

My bladder has finally decided not to fully empty so I have been fighting of bladder infections for a couple of months. I started seeing a urologist a couple of weeks ago, I went through all of the tests and failed. He has me on a low dose antibiotic and is trying some different medications. H...