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Radiological/clinically isolated syndrom

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

@HelenJR 

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HelenJR

Unsolicited advisors

Just went to the dentist and saw the dental hygienist. She asked if anything had changed with my health so I mentioned being recently diagnosed with MS. She didn't say anything. AT ALL. For 30 minutes until the appointment was over at which point she launched into a talk on functional medicine and t...

@summy 

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summy

Dr Coimbra's vitamin d protocol

Hi I have recently been diagnosed with Ms and am reluctant to take medication and therefore have been looking into alternative treatments. I feel hopeful about Dr Coimbra's vitamin d protocol which has been backed up by many other doctors such as Dr Berg. I have started taking high doses of vitam...

@DominicS 

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DominicS

New allergies on Ocrelizumab?

Morning, I am 50, been diagnosed 26y and on 4th DMT. I have never ever had any kind of hayfever type thing. Lately, my eyes have been itching like buggery and though not too red and puffy I could happily gouge them out at times. I have had itchy patches of skin and that is to be expected. I wond...

The cure for MS for me is travel

I start this year my caminho Santiago. I was afraid always thinking and if a can't walk more that 10km. Well it was amazing day by day I whant more :) I share my croundfounding and in there is all the social media. I beg all the community to share my journey, let me show that is possible for all o...

Newbie here!!

Hello I've been recently diagnosed, I'm still getting my head round it, fed up with the chronic pain, I'm working mum with two kids. My MS Nurse is coming to see me next week. I feel like people that don't have MS don't really get it. If I say I'm tired they say oh I am too, erm it's not the same!!...

Experience with Trigeminal Neuralgia

Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...

@basgds 

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basgds

Thanks for accepting my request to join.

I just feel right now like the closer I am to an answer, the further away I am. I have been sick for 5 years and have had multiple diagnoses - Vitamin B12 deficient, COPD, Asthma, Vertigo, Adrenal Stress, Arthritis, Depression, just general aging. The thing is no matter what meds I took, it seems ...

Me, MS, weight and Keto. Long post!

Hello all. Here is a post which I hope communicates a positive event in spite of, and separate to, MS. First, to say that I am not at all a vain person, but have always appreciated being relatively trim and spritely due to good genes. For many decades I have maintained a constant weight, give or tak...

My Ketogenic Diet

I want to share my experiences with everyone about my ketogenic diet. The Keto diet is very low in carbohydrates and high in healthy fats with a medium protein intake, and it is designed to put you into ketosis, which makes your body burn fat for energy, instead of glucose. The benefits can be ama...