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Newbie here!!

Hello I've been recently diagnosed, I'm still getting my head round it, fed up with the chronic pain, I'm working mum with two kids. My MS Nurse is coming to see me next week. I feel like people that don't have MS don't really get it. If I say I'm tired they say oh I am too, erm it's not the same!!...

Experience with Trigeminal Neuralgia

Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...

@basgds 

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basgds

Thanks for accepting my request to join.

I just feel right now like the closer I am to an answer, the further away I am. I have been sick for 5 years and have had multiple diagnoses - Vitamin B12 deficient, COPD, Asthma, Vertigo, Adrenal Stress, Arthritis, Depression, just general aging. The thing is no matter what meds I took, it seems ...

Me, MS, weight and Keto. Long post!

Hello all. Here is a post which I hope communicates a positive event in spite of, and separate to, MS. First, to say that I am not at all a vain person, but have always appreciated being relatively trim and spritely due to good genes. For many decades I have maintained a constant weight, give or tak...

My Ketogenic Diet

I want to share my experiences with everyone about my ketogenic diet. The Keto diet is very low in carbohydrates and high in healthy fats with a medium protein intake, and it is designed to put you into ketosis, which makes your body burn fat for energy, instead of glucose. The benefits can be ama...

Numbness - how does it feel?

Hi, I have been diagnosed with RIS (Radiologically Isolated Syndrome) - basically I have quite some lesions that I accidentally found out about, but never had any symptoms (female, 29-years old). I have a 6-month old daughter and about 3 months ago I started to experience some kind of numbness in ...

Advice. Help

Hi I only got diagnosed 2 weeks ago. I got diagnosed while in hospital and they just told me I had relapse and remission and sent me on my way and told me ill be seen in outpatients the waiting time is up to 10 weeks. I'm really confused and scared I don't understand what's happening what I'm suppos...

Impact of MS on pregnancy and children

Hi all We are looking for people to participate in a research project aimed at understanding the impact of MS on pregnancy and having children. The results from this research would be used to help raise awareness and support for people with MS with children or who would like to start a family. If ...

@Tash41 

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Tash41

Going abroad

Hi, just wondered since being diagnosed how people's experiences of going abroad have changed. Does insurance go sky high for example? Love going on holiday and hoping I can still go every now and then. Thanks

@JamesB 

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JamesB

Time Between Relapses

What is the longest anyone has gone between relapses since they were diagnosed, drug assisted or otherwise?