Seems like a bit of a weird question but does stormy weather effect your ms? There is currently a storm hitting here (the first since I've been diagnosed with ms) and my head feels like what could only be described as stuffy/heavy? My ears have a constant feel to them as if they are about to pop
Before I start, I want to say, I know it's early days...
I was diagnosed in Aug 2019 with RRMS after 18months with a CIS diagnosis. My initial scan showed lesions but they couldn't tell how old or if active. 6 months later a second scan was stable. 6 months later my third scan showed new lesions wh...
Hi
I am 10 years in with RR MS, and had 2 very successful doses of alemtuzumab, in January 2016 and January 2017. I responded very well to the alemtuzumab neurologically (despite being highly prone to any virus, cold or infection going in the 1st year) and in 2018 was in extremely good neurologica...
Hi i was diagnosed with RRMS in 2012 when i was 26. Now 33 I've tried Copaxone, Gylenya and am on my second year of Mavenclad. With Copaxone i had a relapse and never felt any relief. Also i have permanent divots in my legs and arm because of it. Gylenya I was happy with but still finding symptoms w...
Hi, I'm a 49 year old man diagnosed with MS in August this year. My MS is most likely primary progressive and I have just been told I can start Ocrevus treatment next year. I'm getting pretty worried looking at the list of potential side effects and am wondering if anyone here has personal experienc...
Ugh! Had burning stabbing nerve pain in my right foot sat, sun, mon, (of course on the weekend, can't get ahold of any doctors). Felt like my foot was on fire!! started steroid infusions Tuesday, Wed, Thurs, then 2 weeks of oral meds. And I still have the numbness with occasional pain. I was only di...
First time posting on here (or anywhere tbh) Newly diagnosed (3 months ish) and was feeling positive and strong but the last couple of weeks sadness and anger has just overwhelmed me. I know I can be positive and I can overcome this but I suppose I’m wondering if you guys had any tips or advise of a...
Feel like I’m in limbo land at the moment which is frustrating. I have an appointment with my neurologist on 20th Sept to discuss my lumbar puncture results, although he’s sent my GP a letter with results and copied me in.
MRI showed 4 lesion on my brain
Lumbar Puncture confirms “multiple oligoclo...