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Before I start, I want to say, I know it's early days... I was diagnosed in Aug 2019 with RRMS after 18months with a CIS diagnosis. My initial scan showed lesions but they couldn't tell how old or if active. 6 months later a second scan was stable. 6 months later my third scan showed new lesions wh...

Hi I am 10 years in with RR MS, and had 2 very successful doses of alemtuzumab, in January 2016 and January 2017. I responded very well to the alemtuzumab neurologically (despite being highly prone to any virus, cold or infection going in the 1st year) and in 2018 was in extremely good neurologica...

Hi i was diagnosed with RRMS in 2012 when i was 26. Now 33 I've tried Copaxone, Gylenya and am on my second year of Mavenclad. With Copaxone i had a relapse and never felt any relief. Also i have permanent divots in my legs and arm because of it. Gylenya I was happy with but still finding symptoms w...

Hi, I'm a 49 year old man diagnosed with MS in August this year. My MS is most likely primary progressive and I have just been told I can start Ocrevus treatment next year. I'm getting pretty worried looking at the list of potential side effects and am wondering if anyone here has personal experienc...

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Ugh! Had burning stabbing nerve pain in my right foot sat, sun, mon, (of course on the weekend, can't get ahold of any doctors). Felt like my foot was on fire!! started steroid infusions Tuesday, Wed, Thurs, then 2 weeks of oral meds. And I still have the numbness with occasional pain. I was only di...

First time posting on here (or anywhere tbh) Newly diagnosed (3 months ish) and was feeling positive and strong but the last couple of weeks sadness and anger has just overwhelmed me. I know I can be positive and I can overcome this but I suppose I’m wondering if you guys had any tips or advise of a...

Feel like I’m in limbo land at the moment which is frustrating. I have an appointment with my neurologist on 20th Sept to discuss my lumbar puncture results, although he’s sent my GP a letter with results and copied me in. MRI showed 4 lesion on my brain Lumbar Puncture confirms “multiple oligoclo...

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

Just went to the dentist and saw the dental hygienist. She asked if anything had changed with my health so I mentioned being recently diagnosed with MS. She didn't say anything. AT ALL. For 30 minutes until the appointment was over at which point she launched into a talk on functional medicine and t...