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@David_Elliott 

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David_Elliott

Do people really understand the symptoms

Hi folks. I was diagnosed with MS 2018. I've recently retired on health grounds and have just been granted PIP which is a great help. I'm very reluctant to visit anywhere where I dont know where the nearest loo is. Nightmare in the current climate !!! (covid19) Mobility is a problem re walking and b...

@Sofia_Phillips 

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Sofia_Phillips

First thoughts!

I just joined yesterday and I just wanna say how absolutely amazing this site is. I've been fairly unphased by my recent diagnosis, probably because I've known there's something not quite right with me for a while so when I found out it's something that isn't terminal like cancer or motor neuron dis...

@ryba 

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ryba

Glaucoma and MS

Hello! I think I need advice from someone a bit more experienced than me. Does any of you have both glaucoma and MS? How do you get it diagnosed? After my recent optic neuritis (in march) my optician suggested a week ago that I might have glaucoma, but that she is not certain, as it damages nerves i...

@Alex_Bolland 

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Alex_Bolland

Never given a chance.

I have primary progressive MS, and have been trying for a long time to get access to ocreveus, they tell me you have to have recent activity in your brain or you will not get it, i feel my condition has worsened and surely this treatment is worth trying whether you have any brain activity or not, i ...

@mscyclist 

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mscyclist

tec and exercise

Morning all, I've been med free for 15+ years since diagnosis but a couple of recent relapses (including my first learning to walk again episode) have put me on a treatment plan. I'm due to start taking tecfidera soon and wondered how it may affect my exercising? I currently cycle on a static trai...

@Faye_Austin 

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Faye_Austin

Cbd oil

Hi there have any of you had any experience with cbd oil ? Does it work for anyone ? Very curious about this ,and do you take it along side other meds or not ? I know this is not medical registered. But researching it. It looks like it’s very helpful. Any views appreciated

@StevenH67 

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StevenH67

1st Ocrelizumab / Ocrevus experience

Hi, just thought I'd share my experience of my 1st half doze from earlier today in order that someone else may get some use from it. 1st half doze completed today in Glasgow. So far, so good. I got out about 330pm. I was given lots of advice by lots of people. Seems to have worked well. Few sweets, ...

@weakattheknees 

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weakattheknees

Get away from this heat

Does anyone else feel like going camping in Antarctica & relaxing with an ice cream?

@Jeff_Alexander 

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Jeff_Alexander

Jeff Alexander

I, beyond Hate this Cursid Disease! 😡

@novemberrain 

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novemberrain

Peripheral neuropathy and DVLA

I have recently developed neuropathy across both soles of my feet (before, it was more localised). I havent notified my doctor or the DVLA as it's fairly mild but I am attracted to doorframes more frequently. I have slow burn SPMS. I'm not sure whether to keep this to myself or do the honourable thi...