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@Annie_Edlington 

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Annie_Edlington

Work life balance

At the moment my fatigue is through the roof. I am currently working full time but spend most of the weekends in bed or on the couch. I’ve thought about reducing my hours and doing a 9 day fortnight for a while but I’m not sure if this would help me. Has anyone found reducing their work hours ben...

@Bobbij 

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Bobbij

Benign MS

I was just diagnosed with benign MS not quite sure about it as of yet, all I know is my symptoms with Tingling in the scalp, right arm, pain in those areas also plus right leg, are very real, but I guess will know more once I get to see the MS specialist

Newly diagnosed - advice please!

I was dx (RRMS) over the phone on July 24th, a year after the symptoms which led to initial referral by GP to Neurology. Consultant said he was 'anxious to start treatment'. I was given two weeks to decide between Aubagio and Tecfidera. Told if I chose not to have treatment I'd be discharged back in...

Newly diagnosed - UK MSers advice please

I was dx (RRMS) over the phone on July 24th, a year after the symptoms which led to initial referral by GP to Neurology. Consultant said he was 'anxious to start treatment'. I was given two weeks to decide between Aubagio and Tecfidera. Told if I chose not to have treatment I'd be discharged back in...

Newly diagnosed - UK MSers advice please

I was dx (RRMS) over the phone on July 24th, a year after the symptoms which led to initial referral by GP to Neurology. Consultant said he was 'anxious to start treatment'. I was given two weeks to decide between Aubagio and Tecfidera. Told if I chose not to have treatment I'd be discharged back in...

@angieH 

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angieH

New lesion

Just received result of annual MRI of brain and CSP. Quick recap is diagnosed w MS 1998. No DMT or identifiable symptoms until 2017, been on copaxone for 3 years. Most recent MRI says new lesion r fr lobe, and a Highlighting peri ventricular lesion which is also new. I’m feeling a bit alarmed! I ...

@beky 

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beky

Advice/slight rant!

Hi all, hope everyone is doing ok Slightly confusing situation here: i got diagnosed with RRMS in 2018. I had a brain and neck/spine MRI and my brain looked normal but i had 3 lesions on my C spine which accounted for my symptoms. Fast forward to a few a weeks ago and my neuro sent me for another MR...

@Bobbij 

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Bobbij

Keeping positive

Hi was just diagnosed with MS, but going back on the last few years it has affected much longer than just finding out now. My brother has lived with MS for over 40 years. So MS is nothing new to me except learning to live with it myself now, one day at a time. Thanks and take care folks

@hayleyc85 

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hayleyc85

Tysabri cylce change

Hi - i’ve just had a letter through to say my Tysabri infusions are changing from 4-6 weeks due to covid 19. I REALLY feel like im due my treatment when i get into that last week, my life just ends up in slo mo. Fatigue, cog fog, mood & irritability are all at their worst in that week. So to g...

@angieH 

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angieH

Eye symptoms

So basically I know it’s going to be a bad day when I wake up with what I call heavy eyes. Has anyone had this symptom with MS? My eyelids feel weighted and so I have to struggle to keep them open. This will last all day. I do some eye movement exercises like moving my eyeballs in all directions,...