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@Bobbij 

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Bobbij

Keeping positive

Hi was just diagnosed with MS, but going back on the last few years it has affected much longer than just finding out now. My brother has lived with MS for over 40 years. So MS is nothing new to me except learning to live with it myself now, one day at a time. Thanks and take care folks

@hayleyc85 

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hayleyc85

Tysabri cylce change

Hi - i’ve just had a letter through to say my Tysabri infusions are changing from 4-6 weeks due to covid 19. I REALLY feel like im due my treatment when i get into that last week, my life just ends up in slo mo. Fatigue, cog fog, mood & irritability are all at their worst in that week. So to g...

@angieH 

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angieH

Eye symptoms

So basically I know it’s going to be a bad day when I wake up with what I call heavy eyes. Has anyone had this symptom with MS? My eyelids feel weighted and so I have to struggle to keep them open. This will last all day. I do some eye movement exercises like moving my eyeballs in all directions,...

@David_Elliott 

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David_Elliott

Do people really understand the symptoms

Hi folks. I was diagnosed with MS 2018. I've recently retired on health grounds and have just been granted PIP which is a great help. I'm very reluctant to visit anywhere where I dont know where the nearest loo is. Nightmare in the current climate !!! (covid19) Mobility is a problem re walking and b...

@Sofia_Phillips 

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Sofia_Phillips

First thoughts!

I just joined yesterday and I just wanna say how absolutely amazing this site is. I've been fairly unphased by my recent diagnosis, probably because I've known there's something not quite right with me for a while so when I found out it's something that isn't terminal like cancer or motor neuron dis...

@ryba 

Last reply

ryba

Glaucoma and MS

Hello! I think I need advice from someone a bit more experienced than me. Does any of you have both glaucoma and MS? How do you get it diagnosed? After my recent optic neuritis (in march) my optician suggested a week ago that I might have glaucoma, but that she is not certain, as it damages nerves i...

@Alex_Bolland 

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Alex_Bolland

Never given a chance.

I have primary progressive MS, and have been trying for a long time to get access to ocreveus, they tell me you have to have recent activity in your brain or you will not get it, i feel my condition has worsened and surely this treatment is worth trying whether you have any brain activity or not, i ...

@mscyclist 

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mscyclist

tec and exercise

Morning all, I've been med free for 15+ years since diagnosis but a couple of recent relapses (including my first learning to walk again episode) have put me on a treatment plan. I'm due to start taking tecfidera soon and wondered how it may affect my exercising? I currently cycle on a static trai...

@Faye_Austin 

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Faye_Austin

Cbd oil

Hi there have any of you had any experience with cbd oil ? Does it work for anyone ? Very curious about this ,and do you take it along side other meds or not ? I know this is not medical registered. But researching it. It looks like it’s very helpful. Any views appreciated

@StevenH67 

Last reply

StevenH67

1st Ocrelizumab / Ocrevus experience

Hi, just thought I'd share my experience of my 1st half doze from earlier today in order that someone else may get some use from it. 1st half doze completed today in Glasgow. So far, so good. I got out about 330pm. I was given lots of advice by lots of people. Seems to have worked well. Few sweets, ...