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I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...

I developed ITP (low platelets) and low white count 3 years after Round 2 of Lemtrada. It has been 7 months now and I am taking Promacta for my low platelet counts. My neutrophils are staying low and currently are 0.1. Has anyone else developed ITP or low white counts that lasted this long?

Anyone else get highly f*cked off when people spread misinformation about the genetic link in MS? Plus the idea that a parent with MS would be less than and is selfish for wanting to have children!? I have enjoyed my life, I am still enjoying my life at 29, 2 years post diagnosis. Had my parents ha...

Something I have really struggled with is my fitness whilst living with MS. I have created a group On FaceBook so I can share hints/ tips and videos. It would be great if you share/ join 👍 https://www.facebook.com/groups/279985380089987/?ref=share

I apologize in advance for the long post. I know MS is different from Person to person, My ms consists of numbness in my right hand and neurological pain in my abdomen and fatigue and I experience these symptoms on the daily. When I 1st knew something was wrong was my 1st clinical event that happe...

Hi all, I’m looking for some inspiration - I think I need to change career to something that’s more suited to a slower pace of life and a bit less demanding (I’m a digital product manager - which is kind of like a project manager, quite fast paced and demanding). Has anyone retrained to do somethin...

I’ve just started Copaxone and did my first injection with the MS Nurse a few days ago. I just wanted to share some of the advice she gave me in case it’s of use to anyone else, as some of it I hadn’t seen mentioned before. Firstly, she said she doesn’t like the CSYNC autoinjector because it leave...

Hi everyone, I'm currently planning on moving to Dublin, Ireland within the next 6 months and I'm starting to think about changing neurologists. I will obviously have to get a referral from my GP to see a neuro. I've been told that it can take up to 6 months to get an appointment!! Does anyone ha...

Hi all! I’ve just started Copaxone and did my first injection with the MS Nurse a few days ago. I just wanted to share some of the advice she gave me in case it’s of use to anyone else, as some of it I hadn’t seen mentioned before. Firstly, she said she doesn’t like the CSYNC autoinjector because...

good afternoon everyone it's been a while since I last posted anything! My neurologist didn't give me anything new to help my ms she still prescribed me copaxone and she said to stop taking it for a few months and then start taking it again! Since I stopped taking it I have been feeling great having...