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Hi all, I started on copaxone 4 weeks ago. The first two weeks went really well & I had no side effects. Since then every time I have injected I’ve come out in a hot red swollen rash, which has then turned into a hard lump, like a marble (sometimes bigger) in the injection site. Has anyone e...

I’m struggling at the moment. As we went into lockdown, my partner of 11 years decided to tell me he effing hates living with me and dumped me, the same week as I had to have my 19 year old dog put to sleep. He knew from the outset of the relationship that I had ms and it is a degenerative disease...

I don't qualify for Ocrevus either. What I believe is helping me is Low Level Light Therapy. I found a chiropractor who uses it on primarily MS patients. It take about fifteen minutes a treatment: the doctor uses a wand on my spinal cord on my back. I've been using it weekly until the Stay at Home o...

I developed ITP (low platelets) and low white count 3 years after Round 2 of Lemtrada. It has been 7 months now and I am taking Promacta for my low platelet counts. My neutrophils are staying low and currently are 0.1. Has anyone else developed ITP or low white counts that lasted this long?

Anyone else get highly f*cked off when people spread misinformation about the genetic link in MS? Plus the idea that a parent with MS would be less than and is selfish for wanting to have children!? I have enjoyed my life, I am still enjoying my life at 29, 2 years post diagnosis. Had my parents ha...

Something I have really struggled with is my fitness whilst living with MS. I have created a group On FaceBook so I can share hints/ tips and videos. It would be great if you share/ join 👍 https://www.facebook.com/groups/279985380089987/?ref=share

I apologize in advance for the long post. I know MS is different from Person to person, My ms consists of numbness in my right hand and neurological pain in my abdomen and fatigue and I experience these symptoms on the daily. When I 1st knew something was wrong was my 1st clinical event that happe...

Hi all, I’m looking for some inspiration - I think I need to change career to something that’s more suited to a slower pace of life and a bit less demanding (I’m a digital product manager - which is kind of like a project manager, quite fast paced and demanding). Has anyone retrained to do somethin...

I’ve just started Copaxone and did my first injection with the MS Nurse a few days ago. I just wanted to share some of the advice she gave me in case it’s of use to anyone else, as some of it I hadn’t seen mentioned before. Firstly, she said she doesn’t like the CSYNC autoinjector because it leave...

Hi everyone, I'm currently planning on moving to Dublin, Ireland within the next 6 months and I'm starting to think about changing neurologists. I will obviously have to get a referral from my GP to see a neuro. I've been told that it can take up to 6 months to get an appointment!! Does anyone ha...