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Hi all! I’ve just started Copaxone and did my first injection with the MS Nurse a few days ago. I just wanted to share some of the advice she gave me in case it’s of use to anyone else, as some of it I hadn’t seen mentioned before. Firstly, she said she doesn’t like the CSYNC autoinjector because...

good afternoon everyone it's been a while since I last posted anything! My neurologist didn't give me anything new to help my ms she still prescribed me copaxone and she said to stop taking it for a few months and then start taking it again! Since I stopped taking it I have been feeling great having...

Hi all, hope you are keeping well and safe in these unusual times. I am newly diagnosed in March, first symptoms 18 months ago and 1 minor relapse 6 months ago. Other than that I am lucky not to have any symptoms of note. I discussed with my MS nurse DMT drugs early March and my neurologist recom...

Hi guys. I've got epilepsy because of a lesion (yay), and talking to my gp, hes said that when I do start trying for kids, to discuss with him first because of my lamotrigine. So, obviously, I've looked on the bnf (a very good resource for looking at meds, and its what health professionals use) and ...

https://www.youtube.com/watch?v=MM-6kNE4YYw&list=PLVUOB-ZqvZOGuy6t95B67vi5A6nQTY0BS Progression is often the elephant in the room, serving to build fear and trepidation for people who are living with MS. Through investigative conversations that unpick the human side of the topic, ‘Is my MS progres...

Calling all aspiring actors! I am casting the third series of a very successful Netflix show. Please do take a look at the brief below and get in touch if you are interested: Roland is in his 40s. Warm, cheeky, sharp, witty. He has MS with mobility and fatigue symptoms. He lives on his own with ...

Hello everyone, hope youre fairing well. Im having my second round of ocrevus (so first full dose not the half doses) on the 12th of August and have been told i have to shield for six weeks after. I understand why but ive been really careful for the whole outbreak and just as we get to a point wher...

Having a flare up with all my old symptoms , been going on for the last month or so , have had 2 bouts of new symptoms since round 2 of lemtrada 15 months ago , no new lesions on my Last mri Just feeling pretty down about Feeling like I’m Getting worse and struggling doing simple things There are ...

Hi, I'm Mammy to two wonderful little men, the youngest being 5.5 months. I was due to go back on Gilenya sooner but as I'm sure is the case for so many, restart was delayed because of Covid. I'm due to go back on in over 2 weeks but can't get my little one to take a bottle. I've tried different ...

Hi Everyone, Monday, June 29, 2020. 3:00pm. Dr. Mark Skeen, Chief Clinical Neurologist of Duke Health in Durham, NC looks at me and said, "Yes, today's two MRI's confirm my suspicions. Now, let's focus on medicine over the next weeks, so that we can attack this!" For nearly two years, I have been ...