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Something I have really struggled with is my fitness whilst living with MS. I have created a group On FaceBook so I can share hints/ tips and videos. It would be great if you share/ join 👍 https://www.facebook.com/groups/279985380089987/?ref=share

I apologize in advance for the long post. I know MS is different from Person to person, My ms consists of numbness in my right hand and neurological pain in my abdomen and fatigue and I experience these symptoms on the daily. When I 1st knew something was wrong was my 1st clinical event that happe...

Hi all, I’m looking for some inspiration - I think I need to change career to something that’s more suited to a slower pace of life and a bit less demanding (I’m a digital product manager - which is kind of like a project manager, quite fast paced and demanding). Has anyone retrained to do somethin...

I’ve just started Copaxone and did my first injection with the MS Nurse a few days ago. I just wanted to share some of the advice she gave me in case it’s of use to anyone else, as some of it I hadn’t seen mentioned before. Firstly, she said she doesn’t like the CSYNC autoinjector because it leave...

Hi everyone, I'm currently planning on moving to Dublin, Ireland within the next 6 months and I'm starting to think about changing neurologists. I will obviously have to get a referral from my GP to see a neuro. I've been told that it can take up to 6 months to get an appointment!! Does anyone ha...

Hi all! I’ve just started Copaxone and did my first injection with the MS Nurse a few days ago. I just wanted to share some of the advice she gave me in case it’s of use to anyone else, as some of it I hadn’t seen mentioned before. Firstly, she said she doesn’t like the CSYNC autoinjector because...

good afternoon everyone it's been a while since I last posted anything! My neurologist didn't give me anything new to help my ms she still prescribed me copaxone and she said to stop taking it for a few months and then start taking it again! Since I stopped taking it I have been feeling great having...

Hi all, hope you are keeping well and safe in these unusual times. I am newly diagnosed in March, first symptoms 18 months ago and 1 minor relapse 6 months ago. Other than that I am lucky not to have any symptoms of note. I discussed with my MS nurse DMT drugs early March and my neurologist recom...

Hi guys. I've got epilepsy because of a lesion (yay), and talking to my gp, hes said that when I do start trying for kids, to discuss with him first because of my lamotrigine. So, obviously, I've looked on the bnf (a very good resource for looking at meds, and its what health professionals use) and ...

https://www.youtube.com/watch?v=MM-6kNE4YYw&list=PLVUOB-ZqvZOGuy6t95B67vi5A6nQTY0BS Progression is often the elephant in the room, serving to build fear and trepidation for people who are living with MS. Through investigative conversations that unpick the human side of the topic, ‘Is my MS progres...