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@Gilbo 

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Gilbo

PIP claim

Hi, I am waiting for PIP paperwork to arrive to try to claim for this allowance as I am really struggling at work due to regular falls & fatigue. I have read in posts who can help to fill form in i.e citizens advice bureau but wondered should I also contact my ms nurse for a statement about my c...

@Adelleholly 

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Adelleholly

Medication types

Hi, similar to my post yesterday. I’m trying to figure out the best medication and was just curious if any of you have tried Copaxone? If you have did it prove to work or not at all??

@Cassie_Farrugia 

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Cassie_Farrugia

Feeling lost

Hi everyone, I hope you’re all well! I’m feeling a little lost at the moment. I gave birth to my beautiful baby boy 9 weeks ago - unfortunately my epidural was placed in the wrong spot and wasn’t picked up until I went completely numb from the waist down and needed to be moved with a sliding she...

What's your experience of MS services?

Apologies, this is a UK-focused post, but all perspectives welcome. There is a well documented variance in MS services from one area of the UK to the next. The UK MS Society has referred to this as a postcode lottery. What are your experiences? Do you feel lucky to be under the care of your MS cent...

@Shaun_Paskin 

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Shaun_Paskin

Pain Management

Over the past 15 years or so I have taken a host of drugs (ending with ‘in’) without success. Even the last course of lidocaine infusions failed to have the same affect that they originally did. The pain management consultant informed me that the only other way to go was Morphine patches. My GP was...

Experience with Trigeminal Neuralgia

Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...

Radiological/clinically isolated syndrom

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

@carolelawrence 

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carolelawrence

Numbness..

Well still waiting for appointment neurologist..my left leg been numb since January..so my mobility has got worse but yesterday I woke to find my right leg too is going numb! Toes been numb weeks but it's lower leg it's creeping in too now. I've still been ok till today to get up stairs steadily..bu...

@ColettePage 

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ColettePage

Child minding granddaughter

<p>My 14 month old granddaughter lives with us (along with her parents) plus my other sons. 2 are mental health key workers, my daughter in law is a nursery nurse key worker (currently furloughed) and my youngest at uni is earning money working part time as a key worker in Farmfoods frozen food shop...</p>

@thirteen 

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thirteen

Newbie here

<p>Need some advice. I have had health issues half my life. First started when I was about 16. I’ve been trying to find answers for years. Just recently found out that Ms was put in my medical records 2 years ago, although the Dr never verbally told me this. I also have trigeminal, occipital a...</p>