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Hi guys 👋 I'm now SPMS and everything is getting decidedly more difficult. Showering in particular is a major hazard in many ways. My right side is good but my left side is affected by spasticity. I'm right handed and can't do a lot with the left due to weakness and proprioception issues. So...

Hello all, Well I don't know where to begin!? Guess I should start here. Joined this site nearly 4 years ago just after I was diagnosed. I have had this thing approximately 20 years. Not on any medication, not that there seems to be much, the same as help with this - not much. I suppose when I w...

I start this year my caminho Santiago. I was afraid always thinking and if a can't walk more that 10km. Well it was amazing day by day I whant more :) I share my croundfounding and in there is all the social media. I beg all the community to share my journey, let me show that is possible for all o...

Hi All I am being put forward to try FAMPYRA to see if it helps with my walking. Today my MS Nurse asked me if I was still taking LDN as she wasn't sure if it would be ok with FAMPYRA. Does anybody have experience or know if it will be ok to take both together.

The next Zoom meeting that we Falkirk MSrs are having is Sunday June 14th at 11am. This is open to all, MSrs, family or carers regardless of where you are. We have no affiliations and just shoot the 💩 with no agenda nor “top table”.All that’s required is that you drop me a message with an mail addr...

I can separate my family into three groups. First up are my siblings and my daddy. Daddy and my older sister will ask sometimes how I am doing, but I feel it is mostly like an obligation to them. My two older brothers never ask and I never bring it up. Next up are my in-laws. They always ask and th...

Now let’s get a cure

People don’t understand? You must just be tired! I think I know the difference, not sure though, and hard to explain Thanks

and it made me feel so much better. Basically i could enjoy our day out at the Black Country museum instead of looking down at the floor trying to keep my balance and stop falling over!! And, by the end of the day i wasn't totally knackered by fatigue. I'd not planned on it but the woman at the r...

Hey there everyone, so I have recently been diagnosed and put on copaxone, with the medication arriving tomorrow. I also have the CSYNC autoinjector in my drawer, ready to go. If anyone is using, or has used it, I have a few questions. I did not get an appointment with the nurse to show me how to ...