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What's your experience of MS services?

Apologies, this is a UK-focused post, but all perspectives welcome. There is a well documented variance in MS services from one area of the UK to the next. The UK MS Society has referred to this as a postcode lottery. What are your experiences? Do you feel lucky to be under the care of your MS cent...

@Shaun_Paskin 

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Shaun_Paskin

Pain Management

Over the past 15 years or so I have taken a host of drugs (ending with ‘in’) without success. Even the last course of lidocaine infusions failed to have the same affect that they originally did. The pain management consultant informed me that the only other way to go was Morphine patches. My GP was...

Experience with Trigeminal Neuralgia

Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...

Radiological/clinically isolated syndrom

Hi there I’m from Australia, moved to the UK in 2018. In 2009, following a bout of extended vertigo (originally suspected to be labrynthitis) an MRI found a number of MS like lesions. Neurological examination was normal, and a follow up MRI several months later found no changes. Neurologist recomme...

@carolelawrence 

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carolelawrence

Numbness..

Well still waiting for appointment neurologist..my left leg been numb since January..so my mobility has got worse but yesterday I woke to find my right leg too is going numb! Toes been numb weeks but it's lower leg it's creeping in too now. I've still been ok till today to get up stairs steadily..bu...

@ColettePage 

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ColettePage

Child minding granddaughter

<p>My 14 month old granddaughter lives with us (along with her parents) plus my other sons. 2 are mental health key workers, my daughter in law is a nursery nurse key worker (currently furloughed) and my youngest at uni is earning money working part time as a key worker in Farmfoods frozen food shop...</p>

@thirteen 

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thirteen

Newbie here

<p>Need some advice. I have had health issues half my life. First started when I was about 16. I’ve been trying to find answers for years. Just recently found out that Ms was put in my medical records 2 years ago, although the Dr never verbally told me this. I also have trigeminal, occipital a...</p>

@jenny_1 

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jenny_1

Summer Hols

<p>Is it safe for someone with PPMS to holiday in Devon UK this July .. We are prepared to follow all the rules given out by the government. I know MS means a compromised immune system but not sure if MS is on the vulnerable list ?</p> <p>Thank You<br> Jenny </p> <div class="i-support-link"> &lt;...</div>

Daily Briefing Covid-19 [Apr 20th &#039;20]

<p>Afternoon all,<br> –<br> Not sure when I ought to drop the Covid-19 tag from the headline. I think it should last as long the lockdown lasts. We see the conversation subtly changing now to more of the looking ahead. You can’t panic forever.<br> ——<br> MS Stuff<br> R...</p>

@Robean 

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Robean

Nurses with MS

<p>Hi all, just wondering if there are any other nurses out there?? </p> <p>Are you still going to work?? </p> <p>I was planning on carrying on going to work and just being extra careful and socially distancing myself in my personal life (aka not going to shops and restaurants etc) but then I spoke...</p>